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Looking for people who have my type of cancer to discuss who they see what kind of treatments they have had etc.

Had a PET Scan on January 2nd after my 6 circle of chymotherapy and results were inconclusive which my consultant was NOT great help in discussing it, only said they have to have meeting with team and then give me result. I have to say that I had one PET Scan done after my 4th circle and it was great as the consultant said cancer is gone. But I am confused now with inconclusive result after my 6th and final circle. I don't know if I mentioned that lymphoma 2/3 stage. I would appreciate your response

Hi there, Hope you are well. I'm just wondering if you know where I could get information about this. I'm moving to Dublin next month but I've been to see a consultant in Cork and had a biopsy. The biopsy sample has been sent back for further testing. I told the consultant's receptionist that I'll be moving to Dublin, she said we can discuss this at a later date. She said the biopsy results will take a few weeks and we can discuss it then. Is there any way of finding out sooner, if it is cancer, can I be transferred to a hospital in Dublin and would there be a delay in getting treatment because of the transfer? Can I choose which hospital in Dublin ore do they choose for you? They more or less said it was cancer, they just need to know what type. Thank you for any advice you can give, Angela.

Hi I would like to discuss the effects of pembrolizumab.I recently started a course to treat neck and lung cancer.Unfortunately three days after starting my first treatment I picked up the flu which hospitalised me for 5 days.My lungs were badly affected and still are but not as bad.Im wondering is the effects I’m still feeling a result of the flu or is it the effects of the treatment?I had no issues with my lungs previous to starting my treatment.

My dad has been diagnosed with prostate cancer. He never displayed any of the normal signs (frequent peeing etc) . He had pain in his "hip" for several months and after visiting a physio the pain Increased so he went to GP and got bloods. Bloods were irregular so he was referred to mater where he was diagnosed. After initial scans his surgeon displayed signs of urgency and wanted us to go to UK royal marsden for PSMA scan. Me my dad and my mum went to London on 16th December for scan. Follow up with surgeon was on 6th Jan where he was told surgery not an option. Cancer not in bones but it's in lymph nodes. They were told that surgeon was passing him on to a new consultant to discuss treatment plan. Dad has started hormone tablets 1 per day and hormone injection to be administered after day 21 of tablets. Meanwhile referral has been sent to Beaumont for additional treatment (radium) but we are still waiting to hear back. My concern is and it's why I'm here is to find out if anyone else is experiencing this severe pain in the pelvic area that my dad is suffering? Have they missed something? On my research I can't seem to relate the pain my dad is suffering to this diagnosis. I want to put my faith in the professionals but what if they are missing something? We have been told its not spread to bones but what if it's rapidly spreading as we speak and hormone tablets aren't enough. Just love some feedback as I don't want my dad to be treated by protocol if he needs more urgency but we are too ignorant to speak up. Thanks DeeDee

So I had good news and not so good news yesterday. Had FNA results. Lymph node was benign but the tumor in my parotid gland was inconclusive so I now have to get surgery ASAP to remove the tumor. Is inconclusive bad ? The tumor will be biopsied again once removed. Scared of the surgery scared of the outcome but trying to stay positive

Hi there, I'm just wondering if anyone can shed some light on this. I went for a biopsy and was meant to go for an appointment with the consultant this week but they decided at the MDT meeting that the biopsy needed further testing so it will take another few weeks. Is this normal practice? It seems sinister but maybe it's common for this to happen? Thank you, Angela.

Went for mammogram today and was told I'd have to go back again in a couple days for ultrasound and they would have the results of the mammogram that day. Is this normal? Was under the understanding with others who have been in this situation that it was all done on the same day. Thanks so much

Hi, I hope someone might be able to give me advice if you have time. I went for an ultrasound in October and was told on the same day by my GP that they think the lump is suspicious and they think it could be cancer and that I needed an MRI urgently. There were delays in getting the MRI and when I did have the MRI, the GP told me that they think it could be sarcoma. They forgot to send my details and scans to the consultant so there was another delay. I was meant to go on holiday next week as there had been so many delays but the consultant said he can see me next week to let me know the diagnosis. I asked if I could be told over the phone and once I am back from holiday, that I would go for the appointment to talk about treatment plan. I thought this made sense but the receptionist said that he doesn't give diagnosis over the phone and I would need to wait until after the holiday to find out the diagnosis. I'm upset with this, I have been waiting since October to find out if it's cancer and all I'm asking for is to be told over the phone so that I don't have an extra wait of two more weeks. Am I being reasonable? I just don't know anymore, I'm so stressed and really would prefer to find out by phone before the face to face appointment after the holiday. Thank you, Angela.

Hi I am on my 6th week of anastrazole and I’m gaining weight, have joint pain, pins and needles in fingers, very poor sleep, my Blood pressure has raised. I am wondering is it possible through dieting eg slimming world to lose weight when on an aromatase inhibitor? I just don’t feel like myself anymore and feel so much older. Has anyone taking this or similar been able to shift the weight?