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posted by kieran_reynolds
20 December 2024

Creon availability

Hi all, We are having difficulties finding Creon (25,000 units) from our local community pharmacies (South Dublin) for my Dad (newly diagnosed cholangiocarcinoma). Does anyone know of any community pharmacies that have it in stock? Or has anyone faced the same issue and have any potential solutions? We will go back to his surgical team to tell them also, but wanted to try here first. Thanks all, Kieran
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posted by just_me
18 December 2024

Ct & biopsy

Last reply: 20 December 2024 10:41
Hi folks So my brother who lives abroad was experiencing urinary issues with blood in his urine. He acted fast and made an appointment. His PSA levels are normal. He was sent for an ultrasound, it showed bladder and kidneys normal. But the radiologist said is lymphnodes were enlarged . The specialist called that day and has scheduled a CT. When he called the hospital the receptionist said there will also be a biopsy at some point, but no datez given. We're all concerned. I have a cancer history myself . Does anyone know if these tests are normal, especially In Scandinavian countries or is he facing something sinister? The waiting is so difficult. Thanks and lots of love to everyone ❤️
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posted by Paul D
17 December 2024

biopsy results timeline

Last reply: 20 December 2024 14:48
Hi, just a question to the community on timelines for results of biopsies. I had a biopsy last week on a skin issue on my ear. I have been told it will take 4-6 weeks for results, and then they have to be written up and examined; please call back in 6 weeks. So I now have another 6 weeks of unexplained pain and ringing noises. Is this just the way it is now? I am assuming the Dr is not too concerned that I have anything to worry about, but its another 6 weeks on top the time already waiting to get appointments etc Thanks
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posted by deb25
15 December 2024

Prostate cancer

Last reply: 19 December 2024 14:22
Hi, My 79 yo father has been diagnosed with prostate cancer, gleason score 7 and intermediate risk, Awaiting consult with oncologist to discuss treatment options, I am just wondering if anyone has experience of nano knife surgery in UK? How was it and how effective? The low risk of side effects looks promising as my father is very worried about all the different side effects of treatment options here in Ireland. Also is it covered by hse treatment abroad scheme if it is an option. Thanks in advance for any replies
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posted by Daphne
15 December 2024

Refuse hormone therapy

Last reply: 20 December 2024 13:26
Hi everyone! I have stage 3 breast cancer HER+ and hormone receptive. My doctor proposed first chemo then surgery and then hormone therapy. However due to side effects and what I understand only minimal reduction of recurrence risk I think I don’t want to do hormone therapy. Any other person decided the same? Thanks!
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posted by VLarkin1974
15 December 2024

Re-excision of margins- breast

Last reply: 16 December 2024 08:16
I was diagnosed with stage 1 breast cancer in late September. I had a lumpectomy & sentinel node biopsy on 6 Nov. My lymphnodes were clear but the margins were not all 2mm so I had another surgery on 11 Dec. Has anyone else had this additional surgery, I'm finding recovery from this surgery a little frustrating due to the lack of movement I can have & not being able to drive again. Any guidance would be greatly appreciated x
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posted by bettyoconnor
13 December 2024

Metastatic (breast) Peritoneal

Last reply: 17 December 2024 15:13
Primary Breast Secondary Peritoneal Metastatic
2 comments
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posted by lovesdogs
07 December 2024

Sleeping with a PICC

Last reply: 10 December 2024 17:07
Hi I recently got a PICC line put in but am having terrible trouble sleeping with it. I would usually sleep on my side but that is not possible now. Has anyone any tips on how to get a good night sleep with a PICC - Thanks
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posted by Eliza1
28 November 2024

Lung Cancer Steroids

Last reply: 29 November 2024 22:19
I have a family member with lung cancer. We were told a few months ago there was no treatment. Up to 4 weeks ago his breathing had got much worse and was using oxygen a lot. Palliative care put him on steroids he feels fantastic and he hasn’t used his oxygen with a month since starting them. The steroids are being reduced. I’m wondering if anyone here have experienced an immediate come down after coming off the steroids. Is it possible to stay on the steroids longer if no side effects. Thank you
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posted by francesM
28 November 2024

Questions to ask at Triple Assessment

Last reply: 29 November 2024 22:16
Hello all you lovely strong people, I've found a lump and have been referred to Beaumont breast clinic for a triple assessment. Just wondering if there are questions you wished you asked at initial assessment? Staying positive as statically the odds are in my favour but want to be prepared too. Thanks a mil x
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