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posted by Daphne
15 December 2024

Refuse hormone therapy

Last reply: 20 December 2024 13:26
Hi everyone! I have stage 3 breast cancer HER+ and hormone receptive. My doctor proposed first chemo then surgery and then hormone therapy. However due to side effects and what I understand only minimal reduction of recurrence risk I think I don’t want to do hormone therapy. Any other person decided the same? Thanks!
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posted by bettyoconnor
13 December 2024

Metastatic (breast) Peritoneal

Last reply: 17 December 2024 15:13
Primary Breast Secondary Peritoneal Metastatic
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posted by limerick woman
01 November 2024

Referrals and Post op

Looking for some advice. My consultant wanted an mri due to me wanting to be referred. The wait was around a month with me calling twice a week. I got it yesterday but it has stalled everything. Surprisingly, in a good way, the nurse rang me today to say they haven't got a report yet. She then let me know that if the consultant will not refer me, based on the mri, they have provisionally booked the surgery. I said I would then like the surgeon in Dublin to do the reconstruction still and do a full masectomy. She seemed surprised by this and said we can discuss that and wait for your results. Has anyone had implant surgery with shona tormey in UL and how does it look compared to your other breast. I have multiple reasons to wanting to be referred and it does include aesthetics. If they do refuse I would really appreciate some info on anyone who has had a single masectomy with Dr shona tormey. I also wonder can you feel it a lot or does it settle?
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posted by KatDK
07 October 2024

Liver cancer

Last reply: 08 October 2024 15:34
Hello Everyone, My journey with a cancer just began. I'm 42yo Mam of 1 child. Working for many years helping people with disabilities...and now not being able to do much. I wasn't feeling well since July 2024 and went through many scans, biopsies just to find out on Thursday the 3rd of October 2024 that I have cholangiocarcinoma, which is a cancer of the bile ducts in the liver with liver metastases also. In August they diagnosed me with PSC ( Primary sclerosing cholangitis). So on the top of PSC now I'm diagnosed with bile ducts cancer. I never thought going through something like this. For my whole life I was the one who was helping people, and finding hard to be the one who needs help. Doctors gave me 12 months, but I'm not giving up. I would like to tell you all. It doesn't matter how much time they will give you. We have to fight and believe that everything will be fine. It's all about how we approach our diagnosis. I know it's not easy, we are having good and bad days, but don't let bad thoughts to take over our positive thinking. Stay STRONG and FIGHT.
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posted by Mollie1995
21 September 2024

Telling my adult children their Dad is dying

Last reply: 07 October 2024 16:16
My husband's cancer is very aggressive and told today now in brain. Diagnosed 10 weks ago. If lucky only weeks left. We expectation of chemotherapy helping and extending life. Not an option now . I'm reeling myself and don't know how to tell them
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posted by TomRushe
16 August 2024

HIFU - High Intensity Focused Ultrasound -UK

Last reply: 21 August 2024 12:29
Hi, I’m wondering if anyone here has undergone HIFU for prostate cancer in the U.K. How was the process for you and did VHI reimburse any of the cost ? Thanks 🙏
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posted by clara h
20 July 2024

Newly diagnoised multi focal breast cancer

Last reply: 23 July 2024 15:55
Hello everyone . I was diagnosed 4 weeks ago with multifocal invasive carcinoma. It is oestrogen and progesterone receptive . I have six areas in my breast so I need a mastectomy. I am getting the mastectomy and reconstruction on the same day but there is quite a long wait as a plastic surgeon and a general surgeon are involved . It’s now 5 weeks since my initial consultation and they are unable to firm up a date . It’s looking like another 4 to six weeks waiting. I’m a bit demented at this stage. I wonder has anyone a similar experience and were they given chemo? I think you are less likely to have radium with a mastectomy? I feel totally at sea .. many thanks
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posted by Noeleen Wright
11 July 2024

Breast Implant Associated Anaplastic Large Cell Lymphoma

Last reply: 09 August 2024 08:04
I had a mastectomy in 2008 and in 2014 after been given all clear decided to have reconstruction. The Implant that was used were found to cause Anaplastic Large Cell Lymphoma and were discontinued in Ireland in 2018. My gut feeling is to now have Implant removed even though the advice is not to unless you are presenting with symptoms. My thinking is if I have symptoms it is too late. This cancer is treatable but I'm not sure it's curable. Has anyone any advice or in the same situation?
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posted by Timski
22 February 2024

Anyone here living with FAP ?

Last reply: 27 February 2024 15:13
Hello! 39 y.o fella from Dublin. Born with FAP - De nuevo! In and out of Temple Street & Crumlin and had so many tubes and proceedures. Had Total Colectomy with Ileo-Anal and J-Pouch at 16 Now its getting agressive in my Duodenum and will require more surgery this year. Im seeing the surgeon in Vincent's in the coming weeks. You gotta be strong to live with FAP but im feeling quite weak and scared now. Anyone out there with this Beautiful Condition? Id really love to connect and relate to another human being about this. Much love! and thanks for reading
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posted by Cancer Nurse
15 December 2023

Tips for managing over Christmas

Christmas as joyful and a happy time of the year can equally be a very challenging  and stressful time for some.  Dealing with cancer adds another layer of stress and complexity, here are some tips that may help you over the Christmas period.Make sure you have contact details for the service you are attending or who to contact over the Christmas period, this could be the hospital service or maybe out of hours GP services.  Do not put off making contact if any issues or concerns arise, it is important to have your concerns assessed by the medical team.Make sure you have enough of your medication to cover over the Christmas period as there may be limited access to pharmacies over the Christmas period.  Check your pharmacy opening hours especially if you are expecting to be discharged over the Christmas period.Talk to your medical team about your plans for over the festive period, an important consideration may be your immunity. Accept help, people may have offered to help with the cooking, organizing gifts or even help with the decorations.Cancer can have a big financial impact.  Try not to put pressure on yourself this year, writing a thoughtful card or a small gift or token may be just as appreciated.Talk to your loved ones about the plans, it is ok to say no or to have a more simple Christmas this year.  Try not to put pressure on yourself, if you need to take a break its ok to go have a lie down.Try enjoy yourself 😊If you need support or have any questions, please contact our support line on 1800 200 700 or by emailing supportline@irishcancer.ie. The support line is open 9am -5pm on the 27th, 28th and 29th of December. We are closed on Christmas day, St Stephens day and New years Day. The Nurses on the support line would like to express our warm wishes to you this Christmas. 
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