Community

Hi all, We are having difficulties finding Creon (25,000 units) from our local community pharmacies (South Dublin) for my Dad (newly diagnosed cholangiocarcinoma). Does anyone know of any community pharmacies that have it in stock? Or has anyone faced the same issue and have any potential solutions? We will go back to his surgical team to tell them also, but wanted to try here first. Thanks all, Kieran

Hi all, my dad has recently been diagnosed with acute leukaemia following 20 years with Polycethemia Vera. Just wondering has anyone been down this journey? Still awaiting a path forward from doctors.

I am a 37 year old mother of two and I recently found out that they found a grade 1 carcinoid in my appendix (thankfully removed now) but I was told by Limerick (no formal meeting with them or appointment just third hand information as I was in a different hospital for a separate issue when the news came through the other hosptial. I was told to find an endocrinologist and this is proving difficult due to long waiting periods even as a private patient. Now my GP has referred me to a doctor that specialises in gastro/colon issues. Nobody has explained what my next steps are and I feel so lost. I never even received a letter from Limerick with the information but on my discharge letter I learned that the PNM is pT3nXmX and that the margins are clear, tumor was 11mm but that the tumor reached the periappendiceal fat. I have so many questions and I have no idea whats going on. I can't sleep at night but I feel perfect with no symptoms at any stage. Has anyone experienced similar? I can travel to any part of Ireland to be treated but don't know who to be referred to or where to start. I'd appreciate any information as everything I'm looking at is not based in Ireland.

Hi everyone, My name is John I am 40 diagnosed with Kidney Cancer this summer, it's been a strange few weeks. Kidney is gone already, had a few bits removed from bladder as well. That's the very quick version of my story. I will probably write more another time. I have a Wife 4 kids, 2 my own 2 foster(feel like mine) age range 17-4. The last few weeks, It's been a lot. But why am I writing here and now, I guess it's just to express love to everyone who scared or lonely in their diagnosis. I want to say I have love for you, I care and I wish you all recovery and peace. John

Hi all out there with CLL just got my diagnosis 4 weeks ago I am in the wait and see group next appointment is the 19th of September then I hope to get what stage I am at I have been active all my life (68 years old) but over the last year or so I have noticed I was getting tired and not recovering well after cycling events that I have done for many years hope to connect with people that have already got there stage information and would love to share any news that could support and help each other stay safe and try not to worry too much life is for living so let’s get togeather and support everyone living with cancer

I just don't know what to feel I feel like im not in reality and in a few days I'm going to have a stoma bag an start chemo an radiation

Got my results this week. I have invasive ductal carcinoma, it was also found in the lymph node biopsy. I need to have an MRI, CT and bone scan this month to stage it. First line of action will be chemo, they are hoping to start this by the end of the month. Don't think it has hit me yet!

Hi I just had it confirmed today I have small cell lung cancer I I will need chemo and radiotherapy. I have a few practical questions. First one been a wig ware do I buy one in Dublin I'm not vain but don't want to fighting my children or grandchildren this soon chemo starts next week and want to be prepared for every outcome without giving them to much worry.im also incredibly worried about my husband he is my second husband and not the father of my children but they adore him even though they are very close to there dad so are my husband and I but my husband suffers from ptsd and bipolar he is also coming back slowly from a brain injury. I need some advice on how to cope with who is going to take over my home with him when I'm gone This is there family home and he has lived hear for almost 20 years 2 of my sons want to live and look after him and both get on really well with him and all the grandchildren adore him. Do I make a will or affidavit as its very important that he is taking care of and it would put my mind at ease. I kind of know my outcome as I've been with my brother and sister through chemo before they passed away 😢 and also another brother who decided against treatment I know chemo should buy me some time ⏲️ but probably not enough to organise things when chemo kicks in. I probably have a lot more questions but it's just sinking in a little and all the time in the world is such a short time now I'm not giving myself time to think about it I was quite positive up till today no I'm more worried than anything else. I would be grateful for any advice you can give me Thanks for taking the time to read this Paulax

Hello, I've recently been diagnosed with ocular melanoma, I know this is a more rare type of cancer and I'm struggling to find much support for this type. I'm currently being treated, I'm in recovery from my second surgery at the moment and I wanted to ask if anyone has been through eye cancer and has experience or could point me in the direction for help with dealing with it please. Thank you

I am a 34 year old woman, I was diagnosed with grade 2 breast cancer yesterday. I am having surgery to have it removed next week. I am expecting a call from the Cancer nurse tomorrow but I am just looking for suggestions for questions I should ask? It doesn't look like I should need chemotherapy as of yet but I am aware that can change once they have a look at the lump and surrounding tissue once it's out. Any suggestions welcome. Thank you.