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posted by formydad
27 November 2024

Aggressive prostate cancer

Last reply: 30 November 2024 19:22
Hello I am writing on behalf of my 69 year old father. It has been 10 months since suspicion to diagnosis of aggressive prostate cancer. He is now awaiting surgery however he is private and the consultant has informed him it will be minimum 6 months before any surgery. He is a private patient. Is there any other avenue we can take to speed things up and get him surgery sooner through any route possible. Abroad or public or anything else. Any advice is welcomed. Thanks again.
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posted by pimpa
14 November 2024

Decipher test

Last reply: 22 November 2024 15:27
Hi Does anyone know if the Decipher genomic testing is available anywhere in Ireland? Also, re. Psma PET scan, does anyone know the hospital with the shortest waiting list to do this privately? Currently the best I have found is Blackrock, 10 weeks... Thank you
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posted by pimpa
23 October 2024

Nano knife and TAS

Last reply: 29 October 2024 11:22
Hi, my husband just got diagnosed with Gleason 7 prostate cancer, and recommended RARP in Beaumont- I am very worried of the surgery's side effects, and nano knife sounds like a great alternative. It seems to be available in London as well as Germany, Italy, Switzerland. Has anyone tried to get this covered under the Treatment Abroad Scheme?
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posted by Peter Hayes
04 October 2024

Prostate Cancer and Pluvicto

Last reply: 18 October 2024 16:36
I am stage 4 with as my consultant has said, He has very aggressive rapidly castrate-resistant metastatic prostate cancer. He has told me I will need Pluvicto now or in the very near future. We had applied to the Treatment Abroad Scheme as this treatment is not available yet in Ireland and were duly refused on the following grounds. "The TAS does have the remit to fund drug therapies" "The patient is attending as a private patient. The TAS covers public patients only" The application was re-submitted and again declined and this time for different reasons. Any Ideas on what I should do next, Rgds Peter
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posted by NickyR
18 September 2024

Prostate Cancer

Last reply: 20 September 2024 10:52
How long does it take to get back to peeing normally after surgery and catheter
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posted by carver
11 August 2024

PSMA Pet scan for Prostate

Last reply: 14 November 2024 16:04
Hi, I am low risk prostate cancer. I've had biopsy and MRI. Gleason 6. I think (!) that I would like a PSMA pet scan to give a better image of my prostate. If necessary, I could pay privately. How can I get PSMA pet scan?? Thanks folks,
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posted by Richard Newall
16 July 2024

Prostate Cancer Diagnosis

Last reply: 25 July 2024 21:55
Hi I've had a diagnosis of grade 4 prostate cancer. The good news is that CT and bone scans reveal it has not metastasized. Very relieved and hence considering my options optimistically! I'd be interested in hearing from anyone who has undergone a radical prostatectomy and their experience of managing incontinence and preserving some sexual function. Thank you
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posted by carver
14 July 2024

Second opinion on a biopsy

Last reply: 11 August 2024 18:35
Hi there, I recently had a biopsy. I would like a SECOND opinion on this biopsy - totally independent of the first opinion that I recently received. How do I get a second opinion on a biopsy? Thank you.
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posted by hard decisions
12 July 2024

Salvage Prostatectomy v Hormone Therapy

Last reply: 15 July 2024 17:15
My partner had brachytherapy for localised prostate cancer in October 2020. His PSA is now rising again and he has been offered Hormone Therapy. The cancer is still contained within the prostate gland. We have been looking at the possibility of a Salvage Prostatectomy in the UK. I would be most grateful if anyone with experience of either of these treatments could tell us how they worked out. Thank you.
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posted by Clontarfian
27 March 2024

Pre-Operative Physiotherapy (for pelvic floor before radical prostatectomy)

Last reply: 25 July 2024 21:38
Hi, I have just recently been diagnosed with with prostate cancer and have opted for for RARP, scheduled for early May. I am interested to know if anyone has experience of pre-operative physio? My main worry with the prostatectomy is the incontinence issues and I am interested in getting some specialist phsio support in advance to ensure I am effective in working on my pelvic floor. I will ask my consultant (by email as I dont have another pre-opp appointment booked) but wanted to know if there were any physios that might have some expertise in this specialist type of treatment with men pre and post prostatectomy. Also interested in any good resources on specific exercises programs . Thanks to all those who have posted on this forum, looking back at previous posts has been really helpful and encouraging for me as I deal with my diagnosis.
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