Community

Hi, My 84 year old father was diagnosed with metastatic prostate cancer in January, which had spread to the pelvis and right femur. There was no biopsy so we have no Gleason score. His PSA was 31 and it dropped to 1.97 three months after his first hormone injection. But today he went for his second injection six months after starting treatment, and the PSA has risen to 4.9. We now have to wait for an oncology appointment and scans etc. We're worried sick. Has this happened to anyone else and what did that mean for you? Many thanks. Rosalie.

Covid19,prostate cancer,treatment brackytherapy, is my immune system dowm

Hi all, Looking for some help or advise about my dad I'm so worried. He was in his gp doctors and hospital last year got bloods done and there was abnormalities in the PSA bloods he got done. He got called back to have more bloods done and the PSA was rising and then went for a physical examination and the doctor told him that it was 70% chance that its Prostate Cancer. He then told him that he would be screened for MRI and a Biopsy. Months and months no phone call or letter for an appointment that he was told would be soon. It's been over a year now and he has still not been seen for his Biopsy or MRI and I am so worried that hes going untreated this past year, he doesnt feel well(and he never says that unless he genuine feels unwell) and that the Tumour will be spreading. It makes me so angry and worried about it all as I love my Dad so much he is only 57 and I would like if he could be here with us for a long time but not sure will this happen. This is Waterford University Hospital that is doing this and forgetting about him somehow! Anyone that can help would be greatly appreciated. Thank you.

hi My husband, in the past two weeks, has been told he needs open heart surgery to replace a valve in his heart and has also been told that he has metastatic cancer, originally in his prostate four years ago and now in his pelvic bone region. Both conditions have me seriously worried and concerned and we still don't know which will take precedence i.e. open heart surgery or chemotherapy. He is currently taking hormone tablets with a view to getting hormone injections starting within the next week or two. Anyway, I am scared and feeling very alone, as apart from my two sons in their early twenties I have only a handful of friends and no other family. Not sure what I am asking for but would like to know and feel that I am not alone. Thanks.

I was diagnosed with prostate cancer in Nov 2014. I had a tumour T2B/Gleason score 9 Treatment: 4 months androgen treatment to shrink tumour 39 sessions of external beam radiation A further 14 months of androgen treatment. Result as at Feb 2020: -bloods all clear..........testerone back to normal & PSA low -recovered some of my muscle tone -penis & testicles back to about 75% of original size -anejaculation still (but this does not bother me) All in all, I'm very happy with the results and I feel very lucky that I do not have any nasty side effects such as incontinance etc. Cheers to all Zol

Hi, just looking to chat to any people going through this at the moment. My dad has just been diagnosed with prostate cancer. He is 73 and in good health apart from this. He had a biopsy in April. He is 7 on the Gleason scale. Apologies if Ive spelt that wrong. He has been given the option of radiotherapy and or surgery. He told me this morning if he had radiotherapy first, he cannot have the operation. Is this right ? For those who have gone though this, what were the side effects. Thankyou all for reading. Much appreciated.

Hi,I would like to chat about recovery after having prostrate surgery...anyone available?

hi there, my Dad was diagnosed with prostate cancer and prescribed Decapeptyl. For his first injection, he was given Casodex for 10 days before the injection and for 10 days after it. We are now 2 months since the injection. From the beginning he has experienced pain and stiffness which im told is a common side effect. But 2 months in, the waves of pain & stiffness are increasing in their occurrence and painkillers are of no use. Thes pains could then disappear after 3 days and hes fine again until another bout. Has anyone experienced this? He has also started suffering from hot flushes. Has anyone come across a safe remedy which may relieve any of the symptoms? Thank you in advance for any help or advice

I'm finding it hard to cope with my husband's cancer. I'm depressed and feel isolated. Also feel guilty for not coping better

I had my prostate removed coming up to 2 years ago, due to Prostate Cancer. Luckily the cancer was contained within the prostate and I got the all clear soon after, so feel that I am lucky from that respect. My consultant did say that they were able to spare one set of nerves, and was confident that I would regain erectile functionality. We tried various drugs and penile injections, with varying degrees of success and failure. I now use a pump and can get a very good erection with it. I am losing hope of ever being able to get a natural erection, after 2 years. Is there anyone else out there who is having similar experiences, or better results. There is very very little discussion about this aspect of Prostate Cancer. Granted i'm alive and well, had no chemotherapy or radiation treatment and as i said, count myself very lucky. Look forward to hearing from someone on this topic. Cheers