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posted by FAPHusband
28 February 2017

Familial Adenomatous Polyposis

Last reply: 23 June 2021 14:01
Hi I'm new to the forum. My husband was diagnosed with FAP over 13 years ago and had an immediate preventative subtotal colonectomy with IRA. Wondering has anyone out there also been diagnosed with this very rare genetic condition and if so, if they'd like to share?
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posted by AB1976
15 June 2021

Waiting time for appointment

Last reply: 16 June 2021 13:58
Hi found a lump on my breast and my doc referred me for an urgent mammogram 3 weeks ago but haven't heard anything yet. It's been the longest 3 weeks of my life it's all I think about day and night. Can anyone give me any idea of how long it usually takes?? I'm sure with covid and cyber attack that it has probably made waiting time longer, if I had some idea I might not feel so anxious ( probably wishful thinking)
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posted by Mary A
21 March 2021

Endometrial carcinoma

Last reply: 09 June 2021 23:39
Hi, I would like to chat to people diagnosed with endometrial carcinoma. I am fortunate to have recovered from a total hysterectomy and do not need any further treatment. I am quite shaken from having the diagnosis even though I am very fortunate and so much luckier than others with this situation. I’d so much like to link up with others who have had a similar experience .
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posted by Cancer Nurse
27 May 2021

Living Well With and Beyond Cancer Conference 2021

Our free annual patient conference is taking place online next Wednesday, 2 June and Thursday, 3 June. A range of speakers will share their experiences, stories and expert knowledge on living well after a cancer diagnosis through a mix of virtual presentations, interactive workshops and Q&A sessions. The last year has been difficult for people affected by cancer and the uncertainty and isolation continues for many. We would encourage cancer patients, survivors and those that care for them to join us for this unique online event, all from the comfort of your own home. We will look at topics like self-care, healthy eating, exercise as well as advances in cancer treatment. We will also have a virtual exhibition area where you can view information and interact with a range of educational and practical exhibitors and cancer support services. Information about and registration for the conference can be found here.
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posted by km2013
24 May 2021

Biopsy

Last reply: 27 May 2021 15:42
Hi, I had a biopsy 10 days ago. I’m due back for results this coming Friday. I’m completely freaking out. My breast is very tender after the biopsy and last night I had blood from my nipple. It’s the longest two weeks of my life.
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posted by burnt out
25 May 2021

at a loss

Last reply: 26 May 2021 16:59
I’m at a loss here so im reaching out to you to see what we can do. My mother had a radical cystectomy over a year ago and the cancer has come back. She is being treated in one of the Dublin hospitals. The regrowth had been missed on a scan but bleeding continued and was eventually found. Last week they brought her up and got her ready for a radium treatment plan. She got an ok to leave the hospital on Friday, tattoos in place, all ready to start treatment on Tuesday. They were to call her back. It was getting late this evening (the Tuesday her treatment was suppose to start) so she called to see what was happening as we don’t live in Dublin and she had been sitting there with bags packed waiting for a call for two days. The secretary she spoke to gave her a new diagnosis and treatment plan and schedule over the phone. Highly irregular and highly upsetting for her. She is approaching 80 years of age and is as timid as you can imagine. The call with the secretary ended leaving her felling a bit lost and very upset. A few minutes later, just as she was coming to terms with all this, the Dr of radiation Oncology called her. She thought this would be to clear thing up. When she answered the phone he attacked her. How dare she be so ungrateful to bother the staff. After all they had done for her. If she didn’t like it she could go find some other hospital to do her treatment. She is absolutely destroyed at this point. Im speechless. We are going to try to move hospitals but feel we will just delay treatment further. I cant believe how he treated her. Completely inhumane, so much so one the other staff overheard the attack he leveled at her and contacted my mother a few moments later to see if she was ok and offered her apology and tried to answer anything she could. So now we are left we no idea what is happening and my mother has suffered a degrading personal attack by the person entrusted with treating her. I’m angry as hell with him but more than that I’m am devastated for my mother who goes to bed tonight demeaned, belittled and with no idea what tomorrow will bring regarding her treatment. What the hell do we do in this situation.
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posted by madge
17 May 2021

Galway breadt check

Last reply: 18 May 2021 11:58
Anyone know if breadt clinic is affected with the virus attack, appointment this week. No phone lines working.
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posted by madge
30 April 2021

Waiting for appointment

Last reply: 18 May 2021 09:56
I visited my doctor about 5 weeks ago with discharge from my breast. She referred me to Galway Breast Clinic and said it should be 6 weeks for an appointment. Still haven't heard anything. Does anyone know what waiting time is in Galway. Would it be ok to ring Clinic. Going out of my mind waiting.
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posted by andy64
12 April 2021

prostate cancer

Last reply: 23 April 2021 15:54
just been diagnosed to day with prostate cancer head all over the place i,m 57 have ahigh psa , the cancer is contained in the prostate for now i have to decide between surgery or radio therapy leaning towards surgery would like to hear from anyone who has been down this road thanks
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posted by carr21
11 April 2021

MDT meeting

Last reply: 21 April 2021 12:45
Hello. This is my first post and im looking for advice. I had a hysterectomy 4 weeks ago. My local hospital suspected womb cancer so i was referred up to see a Gynacological oncologist who did a d&c which came back clear, but due to large fibroids he booked me in for hysterectomy. Following surgery he didnt give me any cause to think that he found anything suspicious. I know that some others, who had the same op as me at the time , have had a call from the hospital to confirm that their pathology tests came back clear. I however have been told that my tests are back but they cannot tell me anything as it is going to an MDT meeting next week and then im to come back to the hospital a few days later to see them. Im very worried. Would you agree that this is a strong indicator that something unexpected has shown up? Thanks for taking the time to read this, and if anyone has any advice to offer id be grateful. I have nearly 2 weeks til i go back, its going to be a very long wait.......
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