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posted by Maeve
29 April 2021

Parotid Tumor

Last reply: 10 May 2021 10:10
I've just been diagnosed with a malignant parotid tumor and to be honest until a few weeks ago didn't know was the parotid gland was. Is there anyone else out there going through this type of cancer? Id love to connect with people going through this too.
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posted by Daysey
27 April 2021

Second surgery after DCIS diagnosis

Last reply: 10 May 2021 10:05
1. Just back yesterday for the ‘results’ of lumpectomy. I wasn’t expecting surgeon today to say another surgery is needed. Does this happen much? Is there someone out there with the same experience? 2. Also, I would love to know what are the chances of needing radiotherapy afterwards, surgeon hopes I might avoid it, but again, I would love to hear from people. 3. (Couldn’t sleep last night, was inclined to blame surgeon for missing the extra calcification that now bring need for the second surgery. ) All help welcome.
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posted by Marguerite
24 March 2021

Chemo

Last reply: 06 May 2021 12:12
I'm going for my second round of chemo next tue and I'm dreading it. I was so sick after my first round for a week I'm wondering is it worth it.
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posted by transplant21
18 March 2011

mortgages

Last reply: 05 May 2021 13:47
I am thinking of getting my first house after the summer and havent taken any steps yet but was wondering where i stand on getting a mortgage after having a successful bonemarrow transplant after Luekemia only a year ago. From what I gather there is a cap on the amount you can borrow but i am uncertain. Does anyone have any experience in this. cheers
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posted by Beechfield34
10 April 2021

Terrified

Last reply: 05 May 2021 12:35
This week has been the worst week of my life. Diagnosed with Breast cancer on wed. It’s in the lymph nodes too. I’ve to get chemo , surgery and radiotherapy. Next week a bone scan and then a PET scan. I feel and look healthy but I’m terrified the cancer has spread everywhere and I’m terrified of chemo . I work from home so I plan to continue to do that. My emotions are all over the place. Ok one min and actually having panic attacks the next min. Each day is a struggle . I know I have harder days ahead . I’m so worried. I’m in shock. I’m avoiding telling people as it makes it so “real”. Anyone else in the same boat ? Xxx
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posted by lisa123
11 March 2021

Mam recently diagnosed

Last reply: 03 May 2021 20:49
Hi, this is my first time posting here , my mam has recently been diagnosed with primary gallbladder cancer and liver metastasis. They have said it’s serious but treatable but obviously we are all very worried for her . She is starting chemo soon. She is 73 and normally in great health but I’m so worried she won’t make it through . Is this a good sign that they are even doing chemo ? I wanted to ask the doctors more when we went in for her diagnosis but didn’t know how much to say in front of her . They did say it’s stage 4. Does anyone have any words of wisdom to help her and my dad and also how can we help her mentally get through the next while ? Should we talk to her about it or distract her ? Just want to help her as best we can . Thanks all
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posted by roda
17 April 2021

Medical Appt and time off work

Last reply: 02 May 2021 02:27
I have an oncology related appointment next week. My employer does not pay sick pay which I know and understand. I want to take the day as unpaid sick leave. However, thay are insisting that I work another day instead. Is that legal?
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posted by tinytrina
25 February 2021

My partner has newly diagnosed with tongue and throat cancer

Last reply: 02 May 2021 02:18
Hi I’m new here My partner got diagnosed with tongue and throat cancer last week, we have 6 young children and both work, his cancer came as a shock like most, he’s awaiting surgery and has. More tests this week, he has become very ill really quickly which I’m struggling with he’s losing weight and is becoming very tired and his pain is getting worst. I want to support him as much as I can, I will be his main carer is there anyone going through the same thing caring for a loved one, I would like to make new friends going through this journey and we could support each other, what other support can I give my partner I’m feeling lost at the moment
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posted by el1981
14 April 2021

Breast cancer

Last reply: 01 May 2021 10:47
Hi was just diagnosed with grade 2 breast cancer...found lump 4 wks ago but don’t know how long it’s been there but consultant said it’s only a small tumour (1 inch) & my lymph node tested positive so I’ve 2 wait 4 scans 2 make sure it’s not gone any further & this is killing me...but both times docs were checking my lymph nodes 1 said he couldn’t find them being swollen n other said they weren’t that swollen ...not sure if this is a good thing r not?....I would just like to get things movin so I can b on the rd 2 getting better already ...thanks
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posted by maybaby
15 April 2021

DIEP Reconstruction

Last reply: 01 May 2021 08:42
Hi, I was diagnosed with Breast cancer in 2016 (aged 28) I had a mastectomy with auxiliary clearance with immediate reconstruction using an implant and the muscle from my back, (latissimus dorsi flap), followed by chemotherapy and radiotherapy and tamoxifen for 5 years. The implant became distorted and I had it replaced in 2018. The implant was placed very high and overtime a fold formed over the implant, so when I bend down there would be a deep crease, I believe this is called a capsular contracture. I mentioned it to my surgeon a few times but it was dismissed as just something that just happens. I waited until the time was right and I was finished having my family, so I bit the bullet as they say and plucked up the courage to go back and see another surgeon in 2019. I was rushed into making a quick decision and ended up having another implant late 2019, the job looked good at first but over the next 6 months I needed some fat harvested from my tummy to fill in the fold again. This was delayed until October 2020 because of covid. The capsular contraction appeared again 6 weeks later and another fat transfer was suggested. I didn't opt for this as site of the harvest was quiet painful for a time afterwards and I wasn't guaranteed that it would fix the problem. I decided to go to another surgeon and see what my other options would be. This time the DIEP flap was suggested. I have done some research on this and I am not sure it is an option. I know the feel etc is supposed to be great. Can anyone advise me on this. Is the scar on the tummy really hip to hip. Is the recovery really 3 months, do you have to go back for various adjustments, if I needed another mastectomy down the line DIEP wont be an option. I would really appreciate any advice from someone with similar experience. I am conscious of the seriousness of the operation and the fact that I have a young family with little support.
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