posted by john1412
13 October 2008
Osteosarcoma
Last reply:
12 October 2015 11:22
My daughter aged 21 was diagnosed with an osteosarcoma on or in her sacrum in June 2008. She lives and is treated in the UK. She was started on Doxrubican and cisplatin for cycle A and Methatrixate for cycles B and C.
Last week the cisplatin was reduced by 50% and the Methatrixate was suspended due to the damage being inflicted on her kidneys.
In 2005 she was diagnosed with GCT on her sacrum in June and it recurred as an anuerysmal bone cyst. Because of these she had extensive surgery and has been on very strong painkilling drugs since.
Osteosarcomas are very aggressive cancers and in our case the outlook seems to be going from bad to worse.
Is anybody in a similar position to me not knowing how long you may have left with your child?
John
Dear John,
I am so sorry to hear that you and your family have been going through such a difficult time. I hope that someone will reply to your post soon. I just wanted to let you know that the Cancer Information Service is open to you. You can speak to a nurse on freefone 1800 200 700, or chat online at http://www.cancer.ie/chat/ Mon-Thurs 9am-7pm, & Fri 9am-5pm. Alternatively you can email helpline@irishcancer.ie at any time.
The Irish Cancer Society fund a counselling service and this can be accessed in certain parts of the country. If you or your family wish to contact the freefone helpline at 1800 200 700 or email: helpline@irishcancer.ie and we would be very happy to recommend one in your area.
There are also cancer support centres around the country which offer confidential support, information and holistic therapies including relaxation and visualisation etc. These support centres complement the primary medical treatment with education and psychological care for people with cancer and those who care for them. Again, please call us at 1800 200 700 and we will recommend one close to where you live.
Kind Regards