Arimidex and joint ache

Good to hear from you but can't help I'm afraid. What is it you are on. My hair is growing but it's not long enough to see whether it's curly or straight yet.

Yes , I can identify with that , I find walking helps .

Diagnosed mar 2012 IDC

Apr lumpectomy Grade 3 stage 2 sentinal node biopsy , micromet I node
May ,4 AC dense dose , neulasta and heparin (blood clot)
July 12 taxol weekly
Nov, 21 rads

Dec arimidex for 5 years
Age 53

I've not seen armimidex on here before why do you take that?

If you are estrogen positive you will be put on a hormonal treatment either tamoxifin or arimidex . Tamoxifin can be used for pre or post menopausal . Arimidex only post. . After menopause the ovaries shut down ( chemo or natural ) but the adrenal glands produce estrogen so arimidex prevents this . It is a group of drugs called an aromatise inhibitor ( AI) . I could not take tamoxifin because I had a blood clot due to port ? Chemo ? So arimidex was my only option . Luckily, lol , chemo put me into menopause otherwise I was facing my ovaries being removed or a drug called zoladex to put me into menopause . Sorry for this long winded reply

God I didn't realise. I'm oestrogen negative. I'm kind of glad I am when I read all about tamoxifen and now armimidex, so I won't save to worry about taking anything when all this is over. I only had one period after starting chemo then the hot flushes started but I doubt if ill get my periods back

I know 5 years seems a long time ! But when I think of the alternative ! I'm trying to focus on the positive . David Gallagher is my oncologist , he is of the opinion that chemo and hormonal treatment will mean that I have reduced the chance of reoccurrence to around 10 % . !!!

Yes they say that I'm hoping the herceptin will do that for me. Jane my surgeon said the fact I had no cancer in my lymph nodes that my chances of it recurring were very low. Hopefully you won't feel ad for the whole five years!!!

Thanks Dankev. Well at least I am not alone. Have started walking so maybe it will help. I too couldn't take Tamoxifen due to a clot from a Picc Line! Interesting your oncologist has given those numbers for reoccurence rates. Unfortunately I am not looking so hot - it was 60% before RT and now reduced to 45-50 with the Arithmidex. Did you try or were you allowed try Glucosamine? I need to chat with Oncology to see what might work - can't see me living with this for the foreseeable I am completely banjaxed on the right side and am right handed. Oh the joys! but at least I am not alone!!

Interesting ! I had to have more blood tests last week to be sure , to be sure, I was in menopause and had no estrogen leakage ! So when I rang for results I asked about glucosamine and they told me to go right ahead . I am on calcium and vitamin d for the old bones as arimidex can play havoc with them. I had a bone density test in November so that I had a " benchmark " for comparison purposes.

I haven't seen too many posts on arimidex. I'm on them since last August. My bones weren't too good before starting on it but definitly much worse now. I'm on the calcium and fosamax to help. I had a new hip 3 yrs ago when I was 53, so arthritis is an ongoing problem for me. Think its just something we have to put up with, I did ask my oncologist if I could come off them, he just laughed at me

Hi all

Was up at oncology today and they recommend trying Cod Liver Oil, Glucosamine and Chondroitin. Walking and weight bearing exercise, keeping hand joints mobile by squeezing those stress balls etc.

So will work on all that and see them in a month.

Dane

HI Dane glad you found someone else in your situation.

In your last post you mentioned Cod Liver Oil someone mentioned Shark Oil to me the other day and that it is ten times for effective than Cod Liver Oil - must try find out more info meant to be brilliant for the bones.

Great to see you and that lovely curly hair yesterday - think I was a bit zoned talking to you - but sure whats new!

hi. Thank you for putting up this post. I have aches and pains and I thought it was side effects of the chemo. I walk which helps and do stretchs as well. Ye are the only people I have heard of that have had clots too with the pix lines. I also get an injection and my leg aches all the time, especially night time. The joys of it all

Yep Sunflower leg aches at night are a regular feature. Started Pilates hope it helps too.

Thanks for letting me know. sometimes i thought it was the walking but i dont want to stop.
sunflower