Breast cancer
posted by Dane7
27 April 2012

New to Breast Cancer

Last reply: 04 May 2012 16:24

Hi all
I am 46 diagnosed on my 46th birthday with IDC with signs of inflammatory breast cancer. Presented with huge amounts of pain in the right breast and some discolouration but no lumps. Nothing showed up on Mamo but ultrasound showed problems with lymph nodes. So to cut to chase cancer in lymph nodes and MRI reveals 2 tumors in breast and inflammatory breast cancer under nipple.

Started chemo this week Taxotere and Cyclophosphamide 6 sessions proposed. Had a reaction to the Taxotere the next day and an antihistimine is taking care of that. Feel tired and emotional, scalp a bit tingly so best get head gear and wig sorted.

A few questions how long post chemo day do you feel any bit like yourself? and what can you expect to be able to do work, exercise etc?

How on earth do you get your head round a mastectomy (due in Nov). Being large chested just can't get my head around the grotesqueness of being left lopsided for more than a year as reconstruction will have to wait until 1 year post radiotherapy?

Of all the bits involved in breast cancer I just can't stop thinking of and crying about the surgery or butchery as I see it. I know it has to come off if they are to save me but finding it so hard. Is this a natural thought ... did anyone else feel like this?

Will appreciate any advice from the wise. Feeling lost and low I guess it is the shock as this all happened in less than a month - ie no time for planning:-) Any advice greatfully accepted. Dane 7

10 comments

Comments

commented by wilmaone
27 April 2012

27 April 2012 12:37

Hi Dane 7

So sorry to hear of your diagnoses.It is such a shock to get news,followed by endless visits and information overload!!!I can say though it does get a bit better as you go along and you do get your head around it.

I finished chemo 4 weeks ago.As all of us react differently i can only fill you in on my experience of it.I would start to feel 'normal'again after a week although had no taste throughout the 6 rounds.It is a cumulative thing first two werent too bad but by 3rd it hit.Extreme tiredness!!!I hope you find it managable and are not too badly hit.

In answer to your question about mastectomy it does take a bit of getting used to.I am going in for mine on monday.I think i have come to terms with it will let you know after!!!!

Please keep us informed on how you are doing and how you are getting on with chemo.I may not always word things well but will always try.You're not alone.

x

commented by Dane7
27 April 2012

27 April 2012 13:43

Thanks Wilmaone. Much appreciated. Let me know how your surgery goes and all the very best with it.

commented by Madge1
27 April 2012

27 April 2012 14:06

Hi Dane 7

It comes as such a shock to be diagnosed and started on treatment while your still trying to accept it. The only good thing with the speed of it is you learn how to take it in and realise your fighting it already! I too found the first two chemo ok. I had six sessions three weekly the next four I would say I had ten bad days and ten good days. Idid get my hair cut very short but it was still painful for a couple of weeks while falling out.

As for the surgery it is different for everyone but by the time you get there you will have accepted it. In some ways nothing can prepare you for being chopped up we just have to remember it is in a good cause.

I wish you the very best with your treatment and hope all goes well. Please keep us updated with your progress x

commented by encee
28 April 2012

28 April 2012 20:34

Hi Dane 7

I can only imagine that you may be feeling overwhelmed to some degree since you were diagnosed and now going treatment, let alone knowing that surgery is down the line. I can only speak from my own experience, that once I understood the implications of my diagnosis I squared my shoulders and went hell for leather to ensure that I got every opportunity to eliminate cancer and be allowed enjoy my life and family for another while.

There are a few fundamental differences between you and I however, I was small chested so I wasn't too concerned about being lopsided; having said that, when presented with the choice of having immediate reconstruction, I went for it, only because I could and I was worried about how my girls would react to me with no breast. It's hard to know how I would have felt if I had no chance to have a radical mastectomy only.

Your fear is a fair one - as much as i read up about it and Googled it and asked questions, I really couldn't have imagined me being the way I am today. No doubt I've had a few downs but surprisingly I have had way more ups!

The way everyone reacts to treatment is different too - I got through cyclosphomide and doxorubicin ok, wasn't the nicest, usually I wasn't fit to wag three days after treatment and that lasted for about three days and I had four of those regimens every two weeks. I had Taxol one day every week for 12 weeks and apart from being whacked from the pre-Taxol drugs, I was flying it a couple of hours later. I didn't get my very last treatment due to neuropathy kicking in but that's all back to normal now too.

I'm finding myself getting tired these days, when I thought I should be picking up and being livelier so that was a surprise. However, I'm hoping to go back to work in the next week or two, so I'm hoping that maybe I'm tired from doing nothing and need to get back into some sort of routine out of the house again!

Anyway, it's great that you're on this forum; there is always someone with a bit of advice, or even to let rip here is great too because you know you're not alone in going through this.

Take care and I hope everything goes well for you x

commented by Dane7
29 April 2012

29 April 2012 14:44

Thanks girls for all the advice. Had the injection from the nurse 48 hours after the chemo (Neulastn) and was feeling that this is ok, fairly doable but change of heart last night, the joint and bone pain and tiredness was amazing and all so quick. On the couch today feeling between 80 and 90 years of age. Still as afternoon dawns better than the middle of the night last night when I thought I wouldn't see morning. At least I know what I am dealing with now!

commented by Dane7
30 April 2012

30 April 2012 18:55

Ended up in hospital today with reaction to Neulasten. Injection of Diafene and antibiotics later feeling lots better. Sun shining out side puts you in good form despite all the crap.

commented by encee
01 May 2012

01 May 2012 17:30

Jeez, that's a tough one, having a reaction to Neulasta Image removed.

Really hope you get back on the road again, onwards and upwards x

commented by Dane7
03 May 2012

03 May 2012 14:43

Thanks encee. Feeling a good deal better and have a couple of weeks to get my ass in gear before round 2 of the chemo. At least I will know what to expect 2nd time around.

commented by lemrac
03 May 2012

03 May 2012 23:22

[i:1hwpf387]Hi Dane7

I had a mastectomy 12 years ago at age 40. I just decided in my head that I would prefer to live with one than be 6 feet under with two pert ones!!! I had a reconstruction a year later by using my tummy muscle to reconstruct it.... so not only do I now have two breasts.... I have a fantastic flat stomach..... the envy of my three sisters!!

Life will get better', Just take each day as it comes.

My motto is ' this too shall pass'.

Best of luck with all your treatment. [/i:1hwpf387]

commented by Dane7
04 May 2012

04 May 2012 16:24

Thanks Lemrac. A good philosophy and good advice!

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