Sorry new to this

I just don't understand why the nurse would say that to me over the phone has really shaken me.. Am home alone and all the family in England at a funeral.

Oh please don't be despairing she was ringing you with 'good news' they refer to herceptin as "the wonder drug" as it kills cancer cells and stops them from multiplying. You'll have 17 of those with the first lot given alongside chemo. I finished chemo on 31st dec and I continue to get herceptin until August and let me tell you after enduring the chemo which is doable but not easy I skip in for my herceptin. You should be jumping around your kitchen that you're her2 positive seriously. There are no side effects and it takes a couple if hours every three weeks. I say to you happy days. Not everyone can get it and I think we are the lucky ones. Go cele rate Superwhy xxxx you can also pm me if you wish. Going to meet radiotherapy oncologist today. It's all happening.

Oh really the way se said it to me it was like it was bad news.. Thanks girls ye have explained it to me much better than the nurse did.

Oh she shouldn't have I took it to be positive. The tumours have to be labelled. Did she say we're you oestrogen negative? If she dies it means no tamoxifen like myself. Ill keep you posted on the herceptin, so far all I've got is a bit of a runny nose? Who's you oncologist and surgeon?

Hi superwhy, they have done that to me a few times, giving me news over the phone, that you simply can't process fast enough, and it only sinks in long after. They should really wait till your next meeting to give you news like that.

Her2+ is a good thing now days, from my understanding. They have had some amazing success with herceptin. It's every 3 weeks for a year. I have 6 left. But it only targets the cancer cells so your normal cells are left intact compared to chemo which destroys both good and bad.

Hope things are going ok for you, once treatment starts, it will get easier to manage!!

God I've never been to,d anything over the phone. They've always been looking me in the eye when telling me. I'm getting a bad runny nose apparently that's a small side effect of herceptin, but I don't have it all the time. I've got 9 left but I don't mind going in for it

Sorry me again. I had the bone scan yesterday. He put me into it and the 30 mins went past. He just came in an said I need to get extra images and made me put my arms over my head and then scan my right side. The lump is on the left..
Didnt sleep last night with the panic and all sorts of thoughts.
Did this happen anyone else.

Hi superwhy
Yes that happened me with bone scan too.all was ok they just need clear images and sometimes they can't with position.im also her 2 positive I finished in November and apart from runny nose and a little tired its a couple of hours every 3 weeks.your in Vincent's who are you under?
Xx

Under dr evoy in Vincent's the surgeon and will probably have co pick an onglogist tomorrow. Some recommend dr John crown.. On the way now for MRI.

I have Janice walshe and she's fantastic, very clued in, especially to breast cancer and lovely with it. I love her.

thank ct scan tomorrow and meeting dr Evoy. Anyone else look there appetiate at this stage. just cant eat . My husband bought me a juicer today and lots of fruit and veg and managed that but then tried a banana and i just couldnt eat it.

I am so glad this waiting stage is over and that tomorrow we get good news as in it hasnt spread and we move onto the chemo quickly. dr evoy mentioned that if it was hep2 positive it would go that way.

Good luck xxxx

Thank u not feeling great today. Tryin to stay positive but I just keep replaying the bone scan over and over in my mind.

I wouldn't worry about the imaging, it won't change what is already there. Better they get a clear picture to define your treatment plan. It's hard, but I think you have to remember you are in good hands. Maybe trust dr evoy to get you a good oncologist, he might pick someone that more suitable than [name removed by Webmaster]. I know for you, like the rest of this, it's your first time and it's really scary, but remember, they have seen all this before and worse. They know how to treat you. Thinking of you.

I didn't have a choice of oncologist just told by the surgeon that Janice Walshe would be mine. I just felt it was fate and to take what I was given. My friend requested [name removed by Webmaster] but I really don't know whether I would like to go and chose him unless I was given him.

HI Superwhy sorry I missed you yesterday only got the text that night asking if it was me in the spotty dress!!

I too have Janice Walshe as an Oncologist I find her fab - I like that she is a woman for a start as sometimes relate more to them - well to be honest a lot of the time I relate better! I dont know anything about [name removed by webmaster] but feel that you might be meeting his side-kick a lot. Recently I have met Janice on every chemo and it is grea t- its a quick visit but its great to get all my questions answered.

Yesterday she was delighted with how my tumour had shrunk

Hi all.

It is wonderful to see how active you are all on this forum and that it is proving to be a valuable method of supporting each other through diagnosis, treatment and recovery.

However, we would ask you to be refrain from identifying any specific healthcare professionals, especially by name. We understand that you may have the desire to share experiences about health care professionals but it is best done through the private messaging facility which is also available through this forum.

This is also to protect you and the Irish cancer Society from possibly becoming vulnerable to legal action under libel law.

Regards, Webmaster

Sorry ladies I haven't been back on. Got told by consultant that it was a smallish Tumor and as its her2 positive it's chemo now and then a lumpectomy. Don't have to get a sentinal node biopsy. Can't remember why. So meeting jw on Wednesday to get a date for chemo to start. Was at the dentist today gettin a clean and a few fillings before chemo not sure why but nurse told us to..

You're the same as me although I had node removed for examination but it was clear. You're in good hands with JW xxx best of luck you'll be fine xxx

Hi Superwhy
Sorry to read about your diagnosis. But as Wicklow lady said they can do a lot for her positive cancer these days. I'm triple negative which means I could only have chemo and surgery.
I think they ask you to go to the dentist to ensure oral hygiene is ok as sore mouths are very common during chemo and any tooth abysses could be nasty.
Wishing you all the best and stay strong.

Ann