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posted by 🦋
06 February 2024

Waiting on breast biopsy

Last reply: 14 February 2024 10:05
Hi out there Waiting 2 weeks now for my breast biopsy results breast cancer as a normal doesn't run in either side of my families but my mother's sister did die of ovarian cancer which is worrying me that I might have the gene from my mammogram through ultrasound I was told that whatever it is that's there will definitely have to be removed its small by all accounts just so hopefully its got in time just want to know out there some info about this genetic gene and If I do carry it what happens next thank you
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posted by ccg2
05 February 2024

Tamoxifen side effects

Last reply: 14 February 2024 10:03
Hi I'm on tamoxifen. I take a low dose 5mg a day and my doctor is happy me doing this. I was coping v well for about 3 months but last couple of weeks sweats and hot flushes have really kicked in. The sweats wake me several times a night so I'm tired and getting low mood now as a result. My risk of recurrence is v low but I wanted try stay on tamoxifen as I feel better knowing I'm taking it. I'm just wondering has anyone had side effect symptoms l like this improve over time. I'm close to stopping taking it as I'm so tired all the time and feel I've no energy tp do the things I like doing. Any advice v welcome. If I thought it might improve I would stick at it maybe.
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posted by Peter Hayes
31 January 2024

My Journey with Prostate Cancer

Last reply: 05 February 2024 18:23
Since my first post last November, all was on course until December 2023. I had the usual blood tests and my PSA levels were on the rise again. I had been on Zytiga for some time but this drug was interfering with my liver function , so on to a different drug but this caused a lot of dizziness and lightheaded moments, so bad I refused to drive. So after a blood test in November my PSA had risen to 18 , it had been down to 0.75. Oncologist brought forward a PSMA petscan 4 days later and I was back in to see him 22 December. The news was not good, unfortunately your cancer is in the lymph nodes and the left lung and is now ' Incurable '. So now on another drug ,Daralutimide and hopefully this one can hold off the spread . So far no ill effects bar the usual ,tiredness ,fatigue . So now at Stage ivb prostate cancer ......the future ...lets see what it brings Peter
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posted by Carolinebaldwin
15 January 2024

Pratical help required for my lovely Dad

Last reply: 23 January 2024 15:31
My lovely Dad, aged 82 lives alone in Carrick on Shannon, Leitrim. He is recovering from an end ileostomy in April 2023. His care is provided by Galway and Roscommon. He does not drive as he has advanced macular degeneration. I cannot always get to Carrick to drive him to and from Galway and the alternative is a round trip taxi fare with a wait time in Galway of ca €500. He has a few appointments coming up and we are not sure how we will manage. Can anyone suggest a solution?
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posted by shiv76
12 January 2024

Elevated liver enzymes

Last reply: 23 January 2024 13:49
Hey everyone My partner had high liver enzymes after just one dose of Carpo Taxol weekly protocol . Hasn’t been able ti have chemo in 3 weeks due to it ( weekly protocol ) They have a plan but just seeing if anyone else has such a crappy start
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posted by Jellytots1000
11 January 2024

Supporting my best Friend

Last reply: 13 January 2024 17:04
Hi there, My wonderful best friend has just completed her journey and got the all clear. She is worrying about symptoms she felt were signs of her cancer starting even though she has been checked several times and has be told all is ok, the stress and anxiety is has her living in consent fear. I need some advice on how to support her, reassure her without sounding condescending or dismissive and perhaps learn about some support or tools that can help her through this part of her journey. Thank you. A
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posted by bellaboo
11 January 2024

Urgent referral

Last reply: 13 January 2024 17:08
Hi I recently discovered a lump under my arm, I went my GP and she advised a private Ultrasound and mammogram in St Jame's, she said it could take up to two weeks, two days later, I got a call to book me in for the following week, the fast turnaround (however greatful I am) has me very anxious, any advice or is this normal practice, thank you in advance
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posted by Mollsa
10 January 2024

Feeling sick despite not currently on treatment

Last reply: 15 January 2024 15:30
Hi My Dad 74 started immunotherapy about year ago but for last 3 months was unable to get treatment due to thyroid and blood readings. He has circa 4 cancer spots - Sternum upper hip area and groin(I believe stage 3). Due to back pain he has been given tramadol. He is due back to St James Hospital next week for results of CT scan. My question is why he seems to have little appetite and ongoing nausea for over 4 weeks?
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posted by HKB
10 January 2024

TIAs and cancer

Last reply: 11 January 2024 12:31
My 91 year old mother was diagnosed with esophageal cancer at the end of Sept. She's had a stent inserted and is not having other treatment. So she's basically in palliative care at home and we have great support from the local medical community. She had an incident this morning where after feeling weak and being helped to sit on her bed, she basically froze, staring, unable to speak or react to us speaking to her. Her head and neck were rigid and her eyes were unfocused. We've been told she may have already had a TIA or could have them and I'd like to know if this was a TIA. I haven't seen her have one before, though she's complained of the back of her head being 'uncomfortable' on two other occasions... So far there are no visible side effects, such as a stroke might produce or anything similar. She's tired but OK afterwards. Thanks for any input.
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posted by DeclanS
10 January 2024

Melanoma in Situ

Last reply: 10 January 2024 11:10
Hi, today, after an 11 week wait, I received the results from a skin biopsy I had done on a mole behind my ear. The diagnosis was as follows "at least superficial spreading melanoma in situ with dermal regression including chronic inflammation and melanophages to a depth of 0.4mm. Lesion is 2mm clear of nearest peripheral margin" The gross description included "SE measuring 20x11x5mm with a central flat dark brown lesion measuring 10x7mm" I had overheard the junior doctor talking with a senior doctor/consultant outside before they came in and they were mentioning the 0.4mm and they had discussed it before Xmas but there was some confusion. My main oral & maxillofacial consultant then came in and told me it was a strange one and the report was saying melanoma in situ. I have an appointment again in 4 weeks but may be back sooner if they need to take more skin, I believe the MDT are meeting on Friday week. My question is, does the diagnosis seem strange that it would confuse the team, is there something not matching up. Also, what are the chances that I could have other melanoma in situ in other areas of my body once I have one? Any advice, experience is appreciated. Thanks.
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