Community

My daughter aged 21 was diagnosed with an osteosarcoma on or in her sacrum in June 2008. She lives and is treated in the UK. She was started on Doxrubican and cisplatin for cycle A and Methatrixate for cycles B and C. Last week the cisplatin was reduced by 50% and the Methatrixate was suspended due to the damage being inflicted on her kidneys. In 2005 she was diagnosed with GCT on her sacrum in June and it recurred as an anuerysmal bone cyst. Because of these she had extensive surgery and has been on very strong painkilling drugs since. Osteosarcomas are very aggressive cancers and in our case the outlook seems to be going from bad to worse. Is anybody in a similar position to me not knowing how long you may have left with your child? John

We just found out my grandad has throut cancer he is still waitin to get a bed 2 get more tests done to see if its spread it is the size of a fist he has been having pain at his ear and throut going down his throut now and starting to get pain in the front of his head now. I was just wondering if anyone could please tell if they have had any experance with this and how they got on. I would b so thankful with luv Aoife

My husband has just been diagnosed with stomach cancer that has mets'd to his lymph glands and his liver.....and maybe elsewhere. We are so angry that it was not picked up during one of his many doc visits. He takes good care of himself, sees docs regularly, takes his prescribed meds as ordered He complained of stomach issues and was prescribed a myriad of different drugs, none of which worked.AND NO ONE TOOK NOTE! I finally went to the doc with him and demanded that some testing be done. Surprise, surprise, how devestated we are. Just needing to vent a bit I guess. We are all trying our best to stay positive, to not give up hope. Pain level is minimal at this point but he is chronically exhausted. Have an upcoming app't with an oncologist although neither of us has a lot of faith in chemo or radiation. I'm a geriatric nurse and over the years I've cried to my husband about my patients and what they put themselves through to prolong their lives a bit longer. I would be gratful to hear uplifting sucess stories. Thank you,donna65

Hi all , a family member has just been diagonsed with a cancerous tumour of the parotid gland and I am just wondering is there anyone else who has an experience of this.

Hi, My mum has recently been diagnoised with a localised advance tumour in her stomach. She is having trouble keeping food down & losing weight. Any tips for helping her to keep the food down or stop the weight lose would be greatfully appreciated. Also any positive stories or ideas as to how i could help her would also be appreciated. Thanks

my mam was diagnosed just over two years ago with myeloma, cancer of the blood. at that time she was given 4 years to live...this changed everything for everyone, no one realised how sick she was, she had even put it down to menopause, just lack of energy and had gotten used to the pain. shes the strongest woman i know. She got very sick over the last 2 years,she recieved lots of intensive chemo and then a stem cell transplant,which seemed to work, she looks and feels so much better and had so much belief in it that she was convinced she'd get ten to 15 yrs instead..we all kinda believed it, until a recent doctor visit gave her a more "realistic" view. Then three weeks ago, her mother, my grandmother whos lived with us for the past 18 years was diadnosed with pancreatic cancer. we havent told her yet, but i think she knows. i dont live in the family home, havent for nearly 7 years and i dont seem to be able to grasp the possitive attitude the rest of them are portraying. i admire them for it of course, but when i do come to visit i end up getting so sad and frustrated that i blow up at the silliest things and cause arguments or tension when its the last thing i want to do. we never really talked about feelings or emotions growing up, im fine arond my friends but im not very good at expressing myself with my family. In between my rants or arguments i catch myself looking at these two women who have rared and shaped and influenced me so much, and i can see the day when im looking at where they used to sit, or the bedrooms they decorated, or the cup they liked...and i can see me kicking myself for carrying on the way i do now...but i dont know what else to do, im so angry all the time and so afraid to let them know how im feeling incase i upset them, i dont want either of them to hurt any more. Everyones bein so positive and they'r all living near eachother so it seems normal to them, moving home isnt an option. i joined this sight for information and already feel a little less isolated after reading some other members topics. i could really use advise....

surviving pancreatic cancer hi everybody first post i was diagnosed with inoperable panc ca in july 2005 given months to live told it was metastatic first time i ever heard word agreed to trial m200 and gemcetibine every monday lasted 1 year stopped due to effects of chemo and trial worked 3 day week throuout year but struggled jump to july 2008 working fulltime but tumour getting bigger went to hospital massive blood loss into tumour doctors then questioned how i was working and gaining weight given 2 biopsys and told it was neuroendocryne and operated spleen tail of panc removed told if it grew any bigger could not have operated follow up ct and ostre scans no cancer cells walked my daughter down isle 27 feb 2009 didnt think possible there is always hope

Hi, I'm hoping to contact someone in the Tallaght area who has experience with throat cancer and coming to terms with using a peg. I would be very grateful if anyone can help. Thanks.

I was diagnosed with cancer of the oropharanx in August 2005 and finished my treatment in December of that year. I am now cancer free. However in the process I lost the use of my swallow muscles and am totally dependant on peg feeds for my nutrition. I would like to get in touch with other people that are in the same position as myself or those who may just have difficulty swallowing. While researching on the internet I found a treatment called Vital-stim which according to the site has very good outcomes for those whode muscles aren't working due to having had throat cancer. If anyone out there has information on this treatment could they please get in touch. I would also be interested in getting in touch with others that are in the same position as me.

My son has just been diagnosed with Ewing Sacoma in his pelvis. Surgery is not an option. Chemoterapy & radioterapy are the only treatments. Can I have some advice & has anybody succeeded in making a full recovery or had experience of this condition