Community

We warmly welcome you to Our Online Community

Register or login below to get started with Our Online Community.

Login

Register

posted by Freckles
23 January 2013

Ocular Cancer (Melanoma of the Eye)

Last reply: 25 February 2024 17:07
I have recently been diagnosed and have had Radiation treatment for Ocular Cancer (Melanoma of the Eye). I would like to hear from other people who have had or have the same problem. Regards
3 comments
Read the post
posted by biddyq
30 January 2021

Hip fracture in Bone Cancer

Last reply: 08 February 2021 14:24
Good morning folks. My husband has suspected fracture in his hip due to Bone Cancer. Anyone have any experience of this please and what treatment was given. He is stage 4. He has just been brought to hospital in an ambulance as could not even stand up pain was so bad.
1 comment
Read the post
posted by E.c.vn87
21 October 2016

Kidney cancer

Last reply: 04 February 2021 19:38
I've been diagnosed with stage 2 renal cell carcinoma. I'm 29. Has anyone been through this? I'm told odds are very good but it's still terrifying. I am waiting for a date for a nephrectomy
2 comments
Read the post
posted by PN
21 December 2020

Bile Duct Cancer -Cholangiocarcinoma

Last reply: 23 December 2020 02:06
Hi -I'm only writing this as I find it impossible to talk about it to anyone. I was diagnosed with cholangiocarcinoma in November 2019. I had surgery on the affected bile duct and liver re-section in December 2019. I've had follow-up scopes and bowel biopsies since then, with the most recent blood tests for tumor markers a few weeks back. As the blood tests are done in batches the results are due around now. I missed two calls from the hospital (I didn't have my phone on me) and I suspect the calls are related to the blood test results. I've deliberately not tried to ring back as I don't want to hear any bad news before Christmas. I'm due back in January anyway for more scans. I'm finding the stress very tough at the moment and I've had more or less no contact with anyone, outside my immediate family since the first Covid lockdown in March as I've been (lucky enough) to be working from home since then. Just want to get through Christmas and face up to it again in January.
1 comment
Read the post
posted by Frodo
05 December 2020

Worried, awaiting tests (bladder, kidney?)

Last reply: 14 December 2020 13:27
Hi, I am male, 46 and recently had visible blood in my urine (it occurred on one day and in two occasions of urination). Ever since, I have had frequent urination, pressure/pain in the bladder/abdomen and just generally feeling unwell. I went to my doctor the day after i had blood in my urine and he did a manual check of my prostate and said everything seemed ok. There was no sign of any infection but i was put on a precautionary course of antibiotics. My blood tests came back and my doctor said that they found no cause for my symptoms and has referred me on to a Urologist (who I am still waiting to see). I also had an ultrasound and all that showed up was a small kidney cyst that the sonographer said wasn't anything to worry about. I am up the walls with worry and am finding the uncertainty unbearable. I am tormenting myself on google wondering what kind of terminal illness could be at the root of this. I would really appreciate any feedback from anyone who has gone through this. Thank you
1 comment
Read the post
posted by Emjsher
18 November 2020

Stomach cancer

Last reply: 03 December 2020 13:59
Hi all. It's my first time here. My mother has recently been diagnosed with stage 2 stomach cancer. She will start chemo in the next few wks and have her stomach fully removed in a couple of months. I was wondering if there is anyone in the community here that has gone through this procedure? I think it would be really helpful for her to speak to someone who has been through the experience and come out the other side?
1 comment
Read the post
posted by Gerri
14 October 2014

CUP

Last reply: 29 November 2020 08:33
Hi, just wondering if anyone else out there has been diagnosed with Cancer of Unknown Primary?
3 comments
Read the post
posted by biddyq
29 October 2020

TO STEROID OR NOT TO STEROID THAT IS THE QUESTION

My husband was diagnosed with osophageal cancer in Dec 19 had surgery in April and was told in June all looking good go home see you in six months. He continued to have pain and a small growth appeared on his scalp. We were told the pain was muscular and the growth was a cyst... in July having pushed for investigations ourselves he was diagnosed with stage 4 cancer with multiple metastasis in his bones. Th is is extremely rare which is why they dismissed the pain. this does not make it any easier. Anyhow three months on 14 weeks of chemo and he is so thin it is frightening, he has no appetite and his energy is fading fast. He gets steroids for the three days he is on chemo and gets good energy, then he is of them again, no weaning and crashes. He is under care of home care team and they are reluctant to leave him on steroids because of long term affects. He doesn't have time to have long term affects. He also sustained a radiation burn to the area around h is anus and though the skin is healing he still has a lot of pain. Any advice from anyone please. Please do not start telling me about small meals snacks etc I have been there done that. Thank you folks, I am coping most of time but at the moment watching him fade away is doing my head in and I don't feel supported by the home care team just now.
Read the post
posted by Marbel11
23 September 2020

Womb mass

Last reply: 05 October 2020 14:01
Hi all, I had a hysteroscopy 2 weeks ago today after being referred for extremely heavy periods. What they originally thought to be a polyp which they planned to remove in theatre (because of its size) was biopsied. I asked if they still intended to remove the polyp and the doctors reply was that it "isn't a polyp". I am regretting not questioning further what she thought it was but just wanted to get out of there to be honest. The consultant said she would call me by the end of last week (9 days after biopsy) if there was anything sinister, otherwise I would receive a letter with the results. I havent received any results so far which I'm hoping is good news but looking through the forum, 2-3 weeks seems to be a more realistic time frame for results. Are womb biopsys different? I have rang the hospital twice since Friday with no response from the unit because I'm still bleeding since the procedure & they said should only last 3-4 days so am slightly worried. Has anyone any experience in this type of situation please? Best wishes to all of you x
2 comments
Read the post
posted by Tamz
10 March 2020

Worrying about nothing?

Last reply: 16 March 2020 16:02
I had an MRI on my lower back which shows arthritis and the GP said they also mentioned some thickening of the lining of my womb. Ultrasound last year for a cyst showed everything was fine. My GP told me that this was nothing to panic about, there’s no tumors or anything this is something that just needs follow up and I may need a D&C. I looked back at my dates and noted I was ovulating around the time of the MRI. Regardless, I am In panic mode. Am I worrying for nothing??
1 comment
Read the post
© Irish Cancer Society 1999-2024 All Rights Reserved

Irish Cancer Society Head office, 43/45 Northumberland Road Dublin, D04 VX65; Charity Regulatory Authority No. 20009502; Revenue Number CHY5863; Company Number 20868.