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posted by Nick Groom
25 July 2022

After effects of radiotherapy and chemo for throat cancer

Last reply: 02 August 2022 15:04
Has anyone else on this forum undergone radiotherapy, chemo and had a trachea tube fitted as part of treatment for throat cancer? I finished the treatment 12 months ago and had the trachy removed 6 months ago. Since then I have developed internal and external lymphodoema. I also experience considerable pain and discomfort. I cant seem to get any answers as to how long the lymphodoema will last and whether the pain is normal. Any thoughts welcome
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posted by lb1986
20 June 2022

Post esophagectomy

Hi, I am 6 weeks after esophagectomy and still very weak and struggling to put on weight. Just wondering has anyone else experience with this? Have some other complications also. Thanks
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posted by MollyM
21 May 2022

Lymphoma of CNS

HI, Has anyone experience of this type of cancer? I know it is relatively rare. Has anyone suffered with bowel incontinence as a result of this cancer ? Was it possible to get a colostomy bag? Many thanks
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posted by MIKEWALSH
10 November 2021

Mouth cancer

Hello Folks, I had 35 sessions of Radiation and 6 Chemo for cancer in my 'lower back tongue leading to tonsil' which I finished in early October 2021. {last month}. I've lost 3 stone ( i.e40 pounds or 18 kg). I can only take Fortisip - liquid food and my taste has changed terribly. I feel that the mucus membrane is gone from my mouth and throat and so it's hard to deal with any food. I find it to be a lonely place as there is not much follow up from my consulting team which is because they presumably are waiting for the treatment to do its job for the first months. I'd love to hear from other people who have a similar experience to mine and if they have any advice regarding my worries about taste and eating and when I can expect results of treatment and anything else they might feel I should know. Kind regards MikeWalsh
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posted by Eamon R
12 May 2021

Pancreatic Cancer Support Group

Last reply: 30 October 2021 12:31
Hi All I was wondering if anyone is aware of a support group, specific to Ireland, in relation to Pancreatic Cancer ? I had the Whipple Procedure in January of this year and am currently undergoing chemo post operation. Any replies or suggestions welcome Many Thanks
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posted by IrishHiker
05 October 2021

Buddy system?

Last reply: 07 February 2024 18:23
Hi I was wondering whether or not you have the ability to set up a "buddy system" for folks. I have an MPN, Essential Thrombocythemia and it would be nice to connect with someone else who has the same diagnosis.
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posted by Paris2021
08 June 2021

Gastric mass

Last reply: 22 June 2021 15:54
Hi my husband is waiting to get a biopsy on a 3cm mass attached to his stomach wall he has had ct and mri and barium swallow they are confused but said it is an oval solid with some dark thick fluid the tests also state that the mass is heterogeneous in appearance and returns an intermediate signal on T2 W I am really confused with these results cam someone shed a bit of light on them? Really appreciate it xxx
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posted by Maeve
29 April 2021

Parotid Tumor

Last reply: 10 May 2021 10:10
I've just been diagnosed with a malignant parotid tumor and to be honest until a few weeks ago didn't know was the parotid gland was. Is there anyone else out there going through this type of cancer? Id love to connect with people going through this too.
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posted by AnnieD
12 April 2021

Driving after thyroid fna

Last reply: 23 April 2021 15:53
Hi. I’m going for a thyroid fna to have nodules assessed. I have been told to not drive for 24 hours afterwards because I will have a local anaesthetic. But surely this is the same as a local anaesthetic at the dentist?? Anyone advice would be appreciated
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posted by Amaru124
28 March 2021

Tonsil concerns

Last reply: 29 March 2021 15:30
Hi, I am worried about my right tonsil. It seems to have got bigger recently but not swollen if that makes sense. It's opened up at the top and is when you compare both tonsils it's not even a defined shape, just bits of circular tissue. I have been having chest pains and pus pockets behind my tonsils so I have been on calvepen for 4 days and there is no difference. I am worried as there is a red nodule hidden above the misshapen tonsil, very sore and very hard to see. Also my soft palate seems like it is swollen and lower down and my uvula has a transparent coating to it. I am worried about hpv cancer of the tonsil as it is so odd the way it is growing so randomly and antibiotics are not having any effect. Any advice for this?
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