Community

We warmly welcome you to Our Online Community

Register or login below to get started with Our Online Community.

Login

Register

posted by JL
22 June 2023

Using accessible toilets

Last reply: 01 July 2023 02:16
I am recovering from Prostate cancer surgery and am now most likely facing lung surgery. Shortly after my prostate surgery I had to use the accessible toilets in Hueston Station. Unfortunately they were locked with no information about how to have them opened. Unfortunately the delay caused me to soil myself in a very public way. The experience was horrific, worse than being told I had prostate cancer and now lung cancer. When I complained to Irish Rail they advised me that as I was not actually a customer I was not entitled to use the toilet and that they had no duty of care to me i.e. to open the toilet in a timely manner. This has really shaken my confidence about asking to use toilets in public places. Has anyone had a similar experience
4 comments
Read the post
posted by maya
24 May 2023

Facial treatments

Last reply: 20 June 2023 13:10
Anybody has facial treatments like botox, dermal filler etc during the targetted drugs treatment ? ( Herceptin+perjeta) Thank you
2 comments
Read the post
posted by Amy Doran
29 September 2022

Groups

Last reply: 30 June 2024 23:09
Hi I am 31 and currently living with stage 4 breast cancer.i am almost a year into diagnosis now just wondering does anyone know of any social media groups ,group chats or good pages to follow iv seen alot of pages but mostly from the UK .would be nice to know or follow people from the Irish cancer community.
3 comments
Read the post
posted by 2022diagnosis
24 September 2022

Hair dye when on Chemo

Last reply: 23 September 2023 14:44
I have just started chemo and will be on it for six months. I have been told the chemo I will be on that my hair won't fall out but may get thinner. I have been putting in hair dye for over 30 years in my hair now and go grey very quickly. Is there anything I can use in my hair to keep the colour safe and try and hide some of the greys or do I need to wait until after I have finished my treatment before even thinking about colouring my hair. Thanks you.
3 comments
Read the post
posted by amcl
06 September 2022

Autologus stem cell transplant

Last reply: 13 September 2022 09:52
I am day 90 post cell transplant. I have been very sore all over my body for about 2 months now. Doctors can't tell me why or if it'll get better over time. All my bloods are mostly back to normal so it's not related. Just wondering if anyone else is feeling the same post transplant? I feel that my quality of life is quite poor at the moment and is getting me down! I am not too bad when I'm up doing things but muscles and joints get very sore & stiff when sitting/laying! Thanks!
1 comment
Read the post
posted by H0mepage
04 August 2022

Maintenance Herceptin

Last reply: 06 August 2022 07:17
Hi. I'm just completing my 6th chemo/herceptin session and will be going onto maintenance Herceptin every 3 weeks for a year. Have surgery and possibly radiotherapy to look forward too but putting on my positive hat I've a holiday booked layer in year (booked before diagnosis) which I'm hoping to make. Booked for a month so just wondering if anyone has experience of stretching time between injections Or getting an injection abroad? Can reduce hols to three weeks just if it was possible would be a great post treatment treat. TIA.
2 comments
Read the post
posted by Cathyhyn
17 February 2020

Metastic breast cancer

Last reply: 25 May 2022 13:40
I was diagnosed with cancer for the third time at Christmas . Am totally traumatised . Have had radiotherapy and am now on bone strengthening treatment every four weeks . Am very tired is this normal:
39 comments
Read the post
posted by NiamhT
10 March 2022

Medical alert Bracelets

Last reply: 16 March 2022 10:07
Hello, I was wondering if anyone has bought or had a bracelet made up to alert medical teams. I would like to get something as following node removal, my right arm is now compromised and should never be used for blood pressure or for taking bloods etc...Thanks
1 comment
Read the post
posted by Johanne18
28 February 2022

Stage 4 non aggressive ovarian cancer

Last reply: 08 March 2022 16:50
Hello I’m 42 and recently diagnosed with Stage 4 low grade ovarian cancer. Are there any other women with this type of cancer?
1 comment
Read the post
posted by libra1975
03 March 2022

Head scarvss

Last reply: 05 March 2022 11:25
Hi everyone, can anyone tell me where to buy cotton headscarves or other head coverings? I got scarves of amazon but they weren't great. If anyone could recommend a shop, that would be great.
3 comments
Read the post
© Irish Cancer Society 1999-2024 All Rights Reserved

Irish Cancer Society Head office, 43/45 Northumberland Road Dublin, D04 VX65; Charity Regulatory Authority No. 20009502; Revenue Number CHY5863; Company Number 20868.