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posted by soconnor
05 September 2020

Change of Oncologist - advice needed

Last reply: 08 September 2020 12:05
im 2.3yrs post treatment for Rectal Cancer with a permanent Colostomy. Really happy with consultant in a private hospital(im private patient). Hes asked twice to move me to another in team. 1st time said no, then relented said yes, I felt guilty. Now the person responsible for my life, forgive dramatics, ive never met and obviously knew little about my history. Only looked at current bloods. I never realised the relationship with my Onco was so vital to me. Now im so upset. What do I do?
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posted by grasshopper
26 August 2020

So down

Last reply: 08 September 2020 10:11
Hi there, today I'm feeling so low, keep thinking of how long I've left.. 2 young kids and it's so difficult to enjoy the moment and make memories as everyone is telling me to do. I just can't do it, I'm so sad. .(metastatic breast cancer stage 4, terminal) 😥
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posted by Rebelchick
08 July 2020

Renal Cancer

Last reply: 21 July 2020 12:55
Just wondering is any one currently going through oral chemo for renal therapy. This is my second time round on sutinent (sinutab) - the side effects are very different from the last time round - just wondering are others going though the same journey .
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posted by Ava
02 July 2020

Vaginal Dialators

Last reply: 09 July 2020 09:13
I heard Vicky Phelan say that silicone dialators are now available rather than the hard plastic ones that I received during my radiation treatment. How would I go about getting them?
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posted by kora
30 October 2012

deuterium depletion?

Last reply: 10 May 2020 18:15
Hi all! One friend of mine has recommended to us ( my uncle has prostate cancer ) to try deuterium depletion as a complementary therapy. In some European countries ( he is Hungarian ), well known and used this new treatment, for a while. Searching the internet i have found an article from the Journal of Cancer Therapy related to this topic. "Deuterium-depleted water (DDW) is a new promising agent in cancer therapy. The efficiency of the method is based on the discovery, that cancer cells are extremely sensitive to depletion of deuterium (D) and might cause necrosis of the tumor. The purpose of this study was to show the efficacy of D-depletion in prostate cancer (PC) patients. In the dou-ble blind, four-month-long, randomized Phase II clinical trial the daily water intake was replaced with DDW......Application of DDW is a new opportunity in cancer therapy. Growing evidence suggests that D-depletion might play a role both in treatment and prevention of cancer. In vitro and in vivo experiments confirmed the inhibition of proliferation of cancer cells [25] and the possible cancer preventive effect [26]. Numerous other experiments, including the study had been conducted on mice xenotransplanted with PC-3 cells, proved the anti-cancer effect of D-depletion induced by the application of DDW..." For me it is sound very interesting and promising. We want to try any complementary therapies to fight against cancer. Has anybody heard of it?
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posted by ICS Nurse Aileen
20 April 2020

Look Good Feel Better Virtual Workshops

  Look Good Feel Better is a charity that helps boost the physical and emotional wellbeing of women undergoing cancer treatment. Their dedicated team of volunteer make-up artists run workshops across Ireland where women undergoing treatment are invited to attend. During COVID-19 many cancer treatments continue and like all of us in these uncertain times they have found new ways of providing their workshops. Their virtual workshops and informative tutorials will help you with some of the issues you may be experiencing as well as giving you the opportunity to connect with others. To sign up for a ‘virtual make over’ visit their website: www.lookgoodfeelbetter.ie
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posted by Cathyhyn
17 February 2020

Hello

Last reply: 13 April 2020 02:40
Is anyone using this
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posted by MaryB
05 April 2020

Monthly Faslodex injections and Port flushing

Last reply: 06 April 2020 17:23
I have to get monthly injections of faslodex which up until now I was getting done in hospital by an oncology nurse. I also have a port which I understood needed to be flushed every 4 weeks in hospital. Just wondering in the light of covid-19 and avoiding hospitals if - Firstly do I need to have my port flushed every 4 weeks and, if not, how often do I need to get it flushed? It can only be done in hospital as G.P. wouldn't have the necessary equipment. Secondly, can my G.P. or practice nurse give me my faslodex injections? I assumed the oncology nurses were specially trained on how to administer these injections as they are intra muscular.
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posted by happydays
04 March 2020

Zometa

I’m on monthly transfusions of zometa . Feeling bloated and puffy. Anyone else on this treatment . Thanks
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posted by Lambo
07 February 2020

Drug reimbursement, how does it work

Last reply: 18 February 2020 10:25
Hi, I was diagnosed a long time back with head and neck cancer and it has metastized, however, it was not squamous cell carcinoma but clear cell carcinoma. My understanding is that this cancer type, rare as it is, is more commonly found in the kidney. I constantly review different treatment options out there but thus far nothing has worked for me. Latest update I have found is that a combination of Nivolumab (Opdivo®) with ipilimumab (Yervoy®) seems to have best response for RCC. (Renal Cell Carcinoma) My query is this, looking at the HSE approved list of drugs, this combination is approved for use in patients with Renal cell carcinoma, and it's also approved for head and neck patients with squamous cell carcinoma So, my head and neck is not squamous cell carcinoma, so I guess that rules me out on that basis, and even though my cancer is more associated with RCC, I am also ruled out of this combination treatment because my cancer is head and neck even though it's more commonly part of RCC. Can someone please advise what are my options here and if I have this right. I have tried taxol and platin, that combination didn't do anything, also tried sunitinib, which also did nothing, I am now on Xeloda. Should this latest treatment not do anything then I want to raise the possibility of Nivolumab (Opdivo®) in combination with ipilimumab (Yervoy®) with my consultant, but want to know if it's reimbursable for my particular case. Would appreciate any help from anyone out there who might know more on this subject.
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