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posted by Terry Kav
18 December 2018

polycycthemia vera

Last reply: 01 February 2023 21:34
Im looking to talk to someone else with polycycthemia vera.
5 comments
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posted by setty58
20 December 2018

Cannabis as an Alternative Medicine

have you ever tried Cannabis as alternative medicine? I have a sleeping disorder that I can't sleep 2 nights straight. I tried to use a mask but I felt drowning but my friend told me to try cannabis and finally, I can sleep 6 hrs straight now. and I came across this article kylekushman.com/00-box-personal-humidor/ and I learned a lot of information to grow,
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posted by Glenn1
02 January 2019

Recovery

Last reply: 01 October 2019 15:17
Hi,I would like to chat about recovery after having prostrate surgery...anyone available?
3 comments
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posted by Imlost2019
05 January 2019

Mam has six months multiple myeloma

Last reply: 07 January 2019 11:55
Its 1.20am, ten hours since my mams consultant rang me to say that her multiple myeloma is aggressive and not responding to the treatment. She was diagnosed two years ago, had stem cell transplant and rounds of chemo but only got 11 months approx before it came back. i have one sibling, im 40 years old and i am devastated. My husband is asleep beside me right now, my four children ( under ten) are asleep. Im here frozen since i got the call. My dad doesnt know only myself and my brother. Ive one friend in my lofe who lives 3 hours away and my mother was and is my best friend. I can breathe, i cant move. Her ldh is over 700 and six months is the max she will get.
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posted by lorr
08 January 2019

Biopsy Sample

Last reply: 23 January 2019 11:56
I have recently requested a paper review including a review of my biopsy following a diagnosis of a primary adenocarcinoma in my bladder. Hospital in Boston is carrying out review but are having difficulties with Beaumont Hospital releasing the biopsy as Beaumont say this is not normal. Does anyone know if I have a right in insisting on Beaumont releasing my biopsy as this is essential for the full review of my case?
3 comments
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posted by Lambo
18 January 2019

Follow up screenings

Last reply: 23 January 2019 12:00
Hi, recently had a diagnosis of head and neck cancer, and possible metastasis due to one lymph node being positive for tumor. Primary tumor resected with follow up radiation. Can people advise in such a case what does the normal follow up screenings consist off .?
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posted by Bryan54
22 January 2019

Just finding out

Last reply: 04 November 2022 09:29
Hi Im after being with the doctor today and found that I have a very raised PSA 23 and now waiting for next step. Im all over the place. Of course i have myself dead and buried at this stage. Any advice from someone going through the same, outcome etc thanks
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posted by gailf
11 February 2019

Nerve damage

Last reply: 08 March 2019 10:29
Has anyone experienced nerve damage after lymphnode dissection? My obturator nerve was damaged causing lots of issues. 12 months post op and still no recruitment. Would love to hear from someone who experienced similar.
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posted by Dolly
22 February 2019

Reconstruction and smoking

Last reply: 25 February 2019 11:12
Hi, I have been off cigarettes for months in the wait for breast reconstruction but recently split with my partner and caved a bit last week. I just got a date, very soon and I'm terrified they will test me prior to surgery and not proceed. Do you get checked for smoking prior to surgery. I am back off them again.
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posted by CeCe
22 February 2019

Areola Tattoo

Last reply: 08 March 2019 10:33
Hi everyone. I had breast cancer 9 years ago and had a mastectomy with immediate reconstruction with an implant but following radiation my implant was mis-shapen so I dedided to have it removed and my breast built up over the years with fat grafting. In October 2017 I completed my last fat graft and my boobs are amazing. I had my nipple reconstructed at the same time. I had a aerola tattoo done last year with semi-permanent medical grade tattoo. Since then my reconstructed breast has dropped down and the nipple is not in line with my real nipple on my right breast. I have since purchased a custom made nipple for my reconstructed breast from pink perfect prosthetic nipple, absolutely amazing product. My question is: how long does the medical grade tattoo last, as I want to get rid of the tattoo but don't like the idea of laser and was hoping maybe it goes completely from the skin in a couple of years. Anyone have experience of this?
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