Community

Hi all Had my first chemo (Taxotere) on 24th April and head/scalp burning ever since. This morning lots of hair on my pillow and more came off in the shower. Question is how long before it all comes out. Only looks a bit thin in places and should I just shave it all off. Is it less traumatic. What do you think?

Can anyone or does anyone know if its possible to test for the Breast Cancer Gene in Ireland. Breast Cancer is particular prevalent in my family & I am thinking I should have the test. Can anyone advise me please. Thank you so much. Maggiemay.

Hi all Well its 2 weeks already since surgery!!!Healing up very nicely thankfully.Am delighted with result already so when it settles it should be just fine.Am up and about and itching to get going again. Got great news last thursday that ive had a complete response from treatment and surgery and am now clear.am absolutely thrilled at the same time cautious!! XXXX

Hi ladies Am just wondering if anyone has any advice.I had very mild peripheral neurapthy after chemo which didnt bother me at all. Unfortunately after coming round from surgery i couldnt feel my feet at all.This has subsided,but am now nearly 3 weeks post surgery and recovering well except for the pain in my feet.It is dreadful i cant even put on socks without pain they are so sensitive.They go between burning to feeling like they are being stabbed with pins and needles!! I shouldnt complain,but its really starting to get me down as no pain killers even take the edge off. Any advice would be great xxx

Please help, has anyone got lymphnodeoma in the breast. I had reconstruction and mastectomy together, now two years later have got this in the reconstructed breast. Very disappointed.

Hi I'm a male brain tumour patient since 2007.I am a GBM patient since May2011, I've had 4 crainiotomys to date, conventional fractionated RT in 2009,sterotactic Radiosurgery in Nov 2011. I attempted chemotherapy(Temodal) in June 2011 and I have just started a re attempt with it again this week, in the hope my blood results are better to allow me to stay on it for more than 1 cycle this time. I have had a reoccurence since the STRS in Nov2011 and am also suffering from what my consultants are suggesting is Radiation necrosis damage, My left sides upper and lower limb movement is getting drastically worse week by week since the STRS. just wondering if there are any GBM patients or carers out there who have similar stories or had similar experiences they might be willing to share.

Hi everyone, Taurustwin here I never knew this forum even existed, could have done with it the last few months.... My story is that I found a lump on the 15th of February, left it a week to go to the doctor as I tend to get breast mice... The doctor referred me straight away to the Symptomatic Breast Clinic in Limerick where I attended another week later... In a few days later for mammograms, ultrasound and biopsy and when I went back up to the clinic they could tell me I had breast cancer, even without biopsy results... On the 14th of March I had a lumpectomy, right breast, and lymph node biopsy... The lump was only 1cm, I'd caught it very early.... So lymph nodes were clear but I had to go back and have a wider exision done of the original lumpectomy... That came back positive again and I had a mastectomy with reconstruction done on the 2nd of May... I opted for nipple saving surgery so the biopsy on the nipple came back clear too... I have an expander at the moment and going back to the reconstruction clinic next week... Met my oncologist last week who confirmed that the cancer is definitely gone But my Oncotype test was sent off that day too so I'll find out next week if I need chemo or not...As it is I'll be on Tamoxifen for 5 years.... Looking forward to chatting with ye xxx

Hi, I was diagnosed with breast cancer last week, am over the initial shock and the hardest thing I ever had to do in telling my two teenage kids and my mum. I have lobular cancer and am having an MRI next Friday, so I reckon everything will kick off from there. It's great to have this forum to have people who are going through the same process to talk to.

On Monday next a team from 'C Team - Cancer Survivors' will be running in the relay in the Cork City Marathon. You can find out more about us on Facebook: https://www.facebook.com/pages/C-Team-C ... 8393882344 . We'd be delighted if you'd consider sponsoring us. If not, please click 'Like' or 'Share', or pass it on in some format. ....of course, if you're on, or around, the Marathon course on Monday, please give us a cheer!! C Team - Cancer Survivors relay team who are taking part in the 2012 Cork City Marathon Relay are: Mossie Shanahan (Skin Cancer - Cork), Ned O'Brien (Melanoma - Clonmel, Co. Tipperary), John Quigley (Prostate Cancer - Cork). Liam Ryan (Neck & Head Cancer - Ballina, Co. Tipperary) Noel O'Connor (Prostate Cancer - Carrigaline, Co. Cork), Each C Team member has their own fundraising. John Quigley's pages are: Irish Cancer Society - http://www.mycharity.ie/event/c_team_20 ... r_society/ and Cork ARC - http://www.mycharity.ie/event/c_team_2012_cork_arc/ Liam Ryan Cancer Appeal - http://liamryancancerappeal.weebly.com/donate.html Please like, share or donate! Our primary aims of the group are: 1) To raise the profile and awareness of cancer survivors. We're still here and getting on with life. (It may not be easy, but, bugger it, we're dealing with it) 2) To show those facing cancer, whether diagnosed or supporting someone who is dealing with cancer, that we’re getting on with life… and they can too 3) To make contact with other cancer survivors who might join with us in future events and finally 4) (Maybe) raise a bit of money, though this is not a core aim.

Hi does anyone have any experience of post treatment effects. I am so fatigued, unbelievably forgetful & can be quite depressed at times. Generally finding it difficult to cope. Should be so happy that the worst is behind me but find it difficult functioning "normally" or whatever the new normal is. Was back at work part-time but found I couldn't cope & am now back out on sick leave & awaiting re-con. Would appreciate knowing if anyone else has had this experience.