Stage 4 Gals HELP!
Avril here!
Would love to hear from others in the group.
Wonder how everyone is getting on.
I am still on Zometa/Faslodex monthly cocktail.Live in Galway but do not have contact in the 'real' world with others with Stage 4 diagnosis only with the other ladies I have 'met ' on this site.
Am not working so have too much time to think.
Evelyn,
Great to hear from you. Glad your scan brought good news
I have spine mets also. Have scan coming up in June so hope it will be o.k.
Always go into overdrive as scan approaches. I am an anxious Molly.
I am sorry to hear you got a virus as I remember from previous posts that you were working part time.
I will have to start volunteering as find it hard not to let illness consume each waking no matter how busy I am.
Hope all those kids activities going well!
Avril
Strange coincidence.I too was diagnosed Stage $ 23 months ago also.
Hi Avril,
Any news on your scans? I'm keeping my fingers crossed for you. It's so nervewracking. What scans are you having? I have a ct every three months and bone scan every six mths. Life is lived in 3 mth intervals, I've been on zometa, femera and faslodex for the past year. So far things seem to be stable. I was on taxol for a couple of years before that and am finding femara and faslodex much easier on the system. Having said that, I still spend most of the day on the couch, pole-axed. It's sooo frustrating to have so little energy especially in this lovely weather. The mind, of course, is a different matter, and it goes round and round, waiting for the other shoe to drop, worrying about the family, scared of dying, etc. etc.
Take care, Avril. Hugs x
Hi all,just checking in!
Feeling low at the moment. ...chemos keep stopping working after few months and think I'm running outof options. Too afraid to ask how many are left! 4 and half years since re diagnosis and hoping for loss more. Prayers please!
I totally know where you are coming from.
Nearly had a meltdown waiting for scan results.Oncologist said things stable at the minute.CT every 6 months but will be scanned if I have symptoms. Am on Zometa and Faslodex also but after this month Zometa every six months instead of monthly.
I too was on weekly Taxol when first diagnosed with recurrence and found it tough.The headspace is the real problem-I just have had to start antidepressant meds. and also Zanex as anxiety was totally out of control. Energy usually ok but that means taking things very easy-frustrating as wiped out if I do anything remotely different.I think we have to be easy on ourselves.
Hi Lemrac,
Sorry to hear you are feeling so down. I am sure there are more options/combinations.
I too never ask what next but my original oncologist,not one to spare one's feelings claimed that each year is bringing a new drug. I am not great for the prayers[I once was and so was mad when recurrence happened] but I will pray for you and for us all. Your previous messages were such a help to me when I was totally down. Hang on in there.
Avril, I know how you feel with that too much time on your hands. I have been off work for about 7 weeks now since I got a virus a few weeks ago. I live in the country in Offaly so not too much company here too. I am on daily Letrozole and monthly Zometa. My recent scan shows stable disease. I was diagnosed 23 mths ago and have mets in my spine. At least we have been having some great weather recently and we can get out and about.