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posted by Rebel
04 December 2018

Triple Negative BC

Last reply: 23 December 2018 22:31
Hi folks I have recently been diagnosed with stage 2 TNBC. I have had a mastectomy and am due to start chemo in early January. I’m absolutely terrified as when I google TNBC it’s so negative. I don’t know anyone who has had TNBC so any help or advice would be really appreciated
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posted by Nettie
15 November 2018

Tomaxofin

Last reply: 23 November 2018 15:25
I am 58yrs and have been diagnosed with early stage breast cancer, I underwent surgery twice. have been prescribed Tamoxofin and was I am worried about the side effects of this drug, I am a wheelchair user and my mobility is not great and the risk of blood clots from tamoxofin worries my especially. any feedback welcome.
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posted by Mac78
08 November 2018

Capsular contracture

Last reply: 13 November 2018 13:41
Hi all. I am wondering has anyone experienced capsular contracture. I am 10 months post bilateral masectomy with immediate silicone implant reconstruction and am now experiencing pain , swelling, rising of the breast and orange peel appearance on my skin. It has only happened on one breast (the one i had the cancer in) . The other is perfectly fine no issues. My oncologist does not think it is related to my radiotherapy as i finished this in August with no problems. It has only become an issue in the last week or so. I have an appointment to see my surgeon in the next few days but my doctor thinks this could be one of the reasons i am having these symptoms so long after and i was wondering has anyone been treated for this or had to have their implant removed or replaced because of this or what treatment they received. Thanks in advance ☺.
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posted by Mac78
12 November 2018

Peau d'orange

Last reply: 13 November 2018 13:40
Hi all. Has anyone experienced peau d'orange on their breast with implant reconstruction. Have an appointment tommorow to have it checked. I am nearly a year post surgery.Thought it might be capsular contracture which i can deal with but am freaking out now because did the worst thing and googled it and its all about inflammatory breast cancer which has just added to my stress level. If anyone has experienced this symptom and can tell me their experience i would appreciate the insight. Thanks
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posted by Lindal
21 July 2018

Scared out if my mind

Last reply: 12 November 2018 12:01
Hi all I'm trying to be very positive about my breast cancer diagnosis but I'm so scared I've been dianogsed with stage 2 breast cancer in waiting in ct and her I which is making me think it's spread I keep getting pains in my side and back and convince myself it's everywhere please tell me it gets easier all this waiting for tests I need to know What I'm feeling with I'm at my wits end can't sleep or eat now I feel wrecked even before treatment
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posted by Runner girl
31 October 2018

Hair loss during Taxol

Last reply: 05 November 2018 13:16
Probably one of the most googled questions for someone on chemo, what will happen to my hair. Well I just finished 12 sessions of weekly Taxol and my hair has thinned significantly. It started around start of week 6 and continued for couple weeks. It has slow down now as very little hair left. I would guess I have lost 70% volume but still have coverage with what I have. So I started wearing a wide hair band to camoflage it somewhat....
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posted by aoife
07 October 2018

Family planning after breast cancer

Last reply: 16 October 2018 10:21
I'm wondering if I can get some advice from personal experiences about family planning post-breast cancer. I've been on Tamoxifen for the last 3 years (since Aug 2015) and am recommended to remain on this for 2 further years to complete the standard 5-year treatment. My husband and I are eager to start a family but, as a result of my ongoing treatment, this is on hold for now. I've heard some ladies may have shortened their treatment to start their families and I'm curious to hear what influenced or supported their decision in doing this? I've sought advice from my consultant, who is supportive in every way; however I'd like to hear from ladies who've been through this tough decision making process. I realise everyone's situation is very different but any advice would be greatly appreciated. Thank you!
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posted by DST2018
28 September 2018

Palbociclib+ Faslodex

Last reply: 01 October 2018 13:59
I was diagnosed with Mets Breast cancer in Jan 2018. Commenced Faslodex in February with good results. I have been offered Palbociclib in combination to the Faslodex. I’ve been reading about the side effects which are frightening. Any advice or information would be really appreciated
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posted by Vedel
20 July 2018

DCIS + invasive not seen on previous mammogram .

Last reply: 25 September 2018 14:13
My 2015 mammogram was deemed clear but I had 10 cms of DCIS and 5 mm of invasive cancer in 2017 . Is it possible for 10 cms to grow in 2 years ? The 2017 mammogram failed to see 5mm of invasive cancer .
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posted by Bigbird
10 September 2018

Tamoxifen side effects

Last reply: 17 September 2018 14:21
Hi, I'm just wondering if anyone on Tamoxifen is experiencing severe vaginal dryness & very painful intercourse as a result of? I had chemotherapy and radiotherapy but I'm sure this must be as a result of the Tamox. :( I've tried replens & ky lubricant but no change, it's just so cruel! Constant daily reminders :(
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