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posted by CCPT
15 November 2019

Sentinal Node Removal

Last reply: 26 November 2019 13:28
I had the Sentinal node removed last week and 8 days later noticed a lump around the incision. The day ward I went to don’t want to know, my GP doesn’t work outside of office hours and the cancer nurse is the same. Was told to go to a and e and be prepared to wait hours, I really don’t want to do this. Anyone had this, hoping it will go away! Getting a mastectomy in a couple of weeks so it’s only going to be opened again anyway. From what I can see everytime a cancer nurse replies to a question here they just tell you to call during office hours. Obviously my problem has occurred outside office hours, otherwise I’d go to my gp!
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posted by rum
21 November 2019

Failed reconstruction

Last reply: 26 November 2019 11:04
I had skin and nipple spared mastectomy and immediate implant based reconstruction. Unfortunately five weeks later I developed severe infection and had second operation. My nipple was removed and the original implant replaced with smaller. Now I have shapeless small breast without a nipple, real nightmare! I am a freak and cannot look at my body without crying. I cover my mutilated breast with a patch. I have no life, just existence. I am very depressed and my only hope is to have successful reconstruction but I have to wait for that few long months. I have seen pictures of beautifully reconstructed breasts which make me more depressed. I have no idea how long it will take to have new reconstruction as it is not considered urgent. I had appointment to see the surgeon but it was cancelled and I still don’t have it rescheduled. I’m exploring different options and have few questions: 1. If any of you have had reconstructive surgery abroad and is it paid by HSE or VHI for the EU countries? 2. If any of you had failed reconstruction and what further options for surgery you were offered? What is the result of the second reconstruction? 3. How long does it take to have new reconstruction after failed reconstruction? I want to make right choice just to be able to have any life again. Thanks,
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posted by Dee-Dee 4
23 November 2019

Multiple papillomatosis of Breast

Last reply: 26 November 2019 10:42
I am wondering has anyone heard or had experience with this breast condition?
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posted by Waterford19
18 November 2019

Appointment times indicate results?

Last reply: 25 November 2019 22:02
Hi there. I know this might sound silly but I'm just interested in what times people got for their biopsy results and what the outcome was. I was given a number to call last week and when I called I was told they were just discussing my case in a multidisciplinary meeting and I'd get an appointment to meet with the consultant this week. I got my letter today and I've been given a 3pm appointment. I'm wondering if it's bad news as the hospital would be quieter at that time. I'm a nervous wreck. Thanks x
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posted by Colwal33
12 November 2019

Mammogram results different to last years results

Last reply: 15 November 2019 19:41
Hi all. I'm just wondering could anyone reassure me here. I had a mammogram Sat and got told yesterday i need another mammogram as the image of my left breast looks different this year than last year image. They are telling me it's due to using 2 different machines last year and this year. But I'm so afraid. I've already had cancer in that breast 3 years ago and had all treatment. Anyone have any reassurance to offer please x
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posted by Waterford19
09 November 2019

Currently waiting on results

Last reply: 12 November 2019 10:26
Hi everyone. I'm hoping to get things straight in my head because I really need to cop on but my thoughts are running away with me. I'm a positive person usually so I know I'll be grand whatever the outcome. I have had a fibroadenoma removed when i was in my teens. so I'm thinking I'm probably in the same situation again. Found the lump. Got referred to the clinic and i had my appointment within 2 weeks. They did the mammogram as I'm in my mid 30s now. Followed that up with an ultrasound. That was grand. When I got into the chair they asked me where the lump was. I showed them the lower outer quadrant and then i noticed the mammogram up on the screen and there was a bright white triangle and I knew it wasn't the lump i was showing them. I had found a new lump a few days ago but thought it was hormonal. He told me he'd found another one and i told him I'd also found it a few days ago. Anyway they went ahead and did 4 biopsies of the original lump and ignored the new one after that. I wondered why. And why only biopsy one lump? They told me to ring back in a week. I'm thinking they're just really efficient but it all just seemed a little urgent. I hate waiting and I'm only 2 days in and I'm going mad lol. I'd really appreciate any thoughts. I'm just a bit confused. Thanks in advance xx
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posted by boobyj65
10 October 2019

Diep flap reconstruction

Last reply: 11 October 2019 16:13
Hi I am 5 weeks over my operation and my tummy wound is still oozing. I have been to my GP and back to the hospital and they say all is OK and no infection but I am still worried as to why it's taking so long to heal. It's not oozing in the whole area just a small area but just wondered if there is anyone out there who can share with me if they had similar experience. Tummy still feels tight and swollen and I am a bit concerned. I have been and am on 2 weeks course of antibiotics just for caution but these will finish soon. Just looking for reassurance. Any advice would be most appreciated.
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posted by scoobydoo
07 October 2019

Using prosthesis post mastectomy

Last reply: 11 October 2019 16:12
Hi, I am looking at post surgery options (risk reducing double mastectomy), one of which is no reconstruction. I would like to talk to someone who has gone this route, and hear about their experience and advice with wearing or not wearing 2 prosthesises. Thanks
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posted by jacqinthebox
22 September 2019

Hospitals with cold cap therapy

Last reply: 30 September 2019 09:34
Hi all! Newbie here and newbie with BC Stg2 diag in last 2 weeks. I'm interested in any hospitals that you may have seen or recieved cold cap therapy for hair loss. On my confirmation diagnosis, my "Prof" laughed off the notion of cold cold cap therapy, until my angel of a cancer nurse injected and said it sometimes works, and "sometimes" is all I need. Information in Ireland is not readily out there about this. I know I can rent one from an English company but is there an alternative? Any advice or ideas would be greatly appreciated on this. I've yet to start my chemo, (in a few weeks) but I'd like to hit the ground running on this while I have the energy (and anger I guess) to scrap on to holding onto a semblance of the life i have. I know hard days are coming and i won't always be up for the fight. So any ideas, lists, companies (like penguin in UK £££) would be greatly appreciated. Thanks x
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posted by Deedles
26 August 2019

Brand swap tamoxifen

Last reply: 04 September 2019 12:27
Hi all, I just swapped from nolvadex to tamox brand. I was fine on nolvadex but pharmacist said they cannot get it any more. I'm so sick on tamox and my hair is falling out and I feel so tired. I really want to go back onto Nolvadex. Anyone having similar issues? Fedupwithtamox.com
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