Community

Hi, I had a lumpectomy in Dec 19, chemo Jan and radiation in April.i was really lucky my treatment progressed normally and uninterrupted by COVID 19. The follow up now though is to be seen in June by Radiotherapist, then July by Oncologist and finally next Dec by Breast Surgeon (12 months later) . What is the usual policy for post treatment follow up and also wondering as people ask me : am I going for scans and I’ve no appointment as such bar above. Also some survivors have had PET and CT scans, is this usual in most hospitals ? Otherwise I’m recovering very well, hair and energy is starting to improve. Thanks Ladies, P.

Hi everyone, Just a question about my mam! She was diagnosed out of the blue ☹️ with stage IV breast cancer, that had spread to her bones, last June. She’s 73 and very active. She’s just finished 6 months treatment and was told initially that once that was finished, she’d have a scan and they’d work from there. The treatment finished yesterday, she was sent home and that was it. No consultation or communication of what was to come next. I rang the hospital today to get through to the oncologist. They eventually rang Mam and said they’d do a scan next week. And that was more or less it. It’s great to know she’s going to have the scan but I’m just anxious about what that could reveal and if it’s spread more, what does that mean? I was also annoyed that it took a phone call to find this out and be offered a scan date. I completely understand that she’s not the only one and they are so busy but it’s tough not to have any one to one communication when she’s there having treatment. I’d love to chat to someone who knows the ins and outs. Sorry it’s my first post and I haven’t even read through any other threads. I’m at a loose end for her as she means the world to me and especially my daughter, who she has looked after every day since she was born.

I had a partial mastectomy on 18th March. Thankfully I do not need chemo and will shortly have a two week course of radiotherapy. Has anyone got any recommendations on how to take care of the skin on my breast during and after the treatment?

Hi, I was at the triple assessment unit in Beaumont on the 3rd Jan, had two mammograms done, and then an ultrasound. I have very dense breast tissue. The Radiologist said there was something not quite right looking on what was thought to be a cyst and wanted to do a FNA. No fluid came out so she did a core biopsy. I have been waiting for the phone to ring but got a letter dated 10th Jan yesterday to come to back to the clinic on 31st Jan. Is this a good sign that its taking so long to get the results? Is 4 weeks a very long time to have to wait for results is this normal? Thanks

Hello all, Anyone have any experience of cording after removal of node ? Thanks

Hi I'm starting chemo next Tuesday . 7 weeks post OP lumpectomy and full axillary clearance. Anxiety is at all time high especially with covid 19. Any words of wisdom much appreciated .

Hi I am hoping to find out whether u get the results of your mammogram straight away or not -this will be my first one after a year long treatment for breast cancer

Hi All, I am a childhood cancer survivor. I had Hodgkins at 16 and am now 37, I have been screened with MRIs for breast cancer for the past 3 years. Last week I met with the family clinic and they recommended preventative double mastectomy. I have asked to keep being screened for 2 more years to get my head around it and to get fit for it. I'm looking for anyone who has been through this and any help they could give me regarding finding supports for the mental and physical journey. Thanks a million!

Hi all I have had 6 cycles of taxol and my liver enzymes have risen to a very high level over last few weeks. I was told on Thursday that I would not be getting my taxol, just my herceptin was given. The nurse mentioned that I might need a liver ultrasound, which had sent me into a panic. I am for repeat bloods and hope to get a plan this week . Has anyone any experience with this kind of interruption to their weekly taxol, any advice welcome. Good luck to all receiving treatment, especially at this worrying time with corona virus, Thanks , Dotgos

Hi I am one year and 7 months after my ops for breast cancer, 5 months ago I had a mini stroke. Is it normal to still suffer with fatigue after this time. I also find I get very tetchy coming up towards my next mammogram etc. Does anyone else find these problems of fatigue and moodiness?