posted by Aileen PMBCL
28 January 2025
CAR T therapy
Last reply:
31 January 2025 22:23
Has anyone been through process of CART therapy? I’m Pmbcl refractory. After my third pet scan on on Jan , it was agreed that I start Car T in St James. I was told my pet scan showed a great response to chemo. Sounding that I was bordering between stem cell or cat t , At James they required a 4th petscan after my 3rd cycle of RICE It’s worrying that in a space of three weeks , they have concerns about my most recent pet scan that occurred yesterday. Everyone tells me how well I’m looking and it’s hard to voice at times , the stress and insomnia of managing this cancer
Comments
commented by Aileen PMBCL
31 January 2025
31 January 2025 22:23
Thanks for your reply. I’m glad to hear of someone that went through it and you are in remission. I hope that recovery is going well for you.
Hi! I was also refractory for the same type of cancer, I had Car-T cell in James January of last year, had slight crs and the odd sort of fits! Got remission in may and so far scans are still clear! All the best