Cold cap scalp cooling
Hi everyone! I’m just wondering does anyone have info or practical experience of self-sourced cold cap therapy? My consultant-affiliated hospitals do not provide this service and I am reluctant to change hospitals and consultant to avoid delays.
Does anyone have experience of renting machines or equipment themselves? I know private insurance covers some costs but is the process slow and stressful?, i obviously don’t want to delay treatment etc and not keen to use equipment involving dry ice as I fear trying to get consistent deliveries of this in time for each treatment may be very stressful and or may not always be successfully delivered. Any info would be greatly appreciated and if it isn’t in time to help me, then at least I will be able to help the next person to navigate the query a little easier.
Thank you so much in advance!
Comments
I don’t have any helpful advise for you , but I am also considering the same. What hospital are you attending? I am only receiving my treatment plan on Tuesday. However I know it will be a mastectomy and chemo just not sure in what order. My daughter’s communion is in May and I would love to try conserve some of my hair , but equally I’m wondering if the whole process is going to be more stressful than helpful. I am attending the matter private I’m not sure if they offer the service or not.
I hope you’re doing well during this time. X
Dear agatha.
Thank you for posting to the online community. I do hope you receive some responses soon.
The cooling systems vary with everyone, in terms of how they are tolerated and how effective they are. People respond differently, so success can only be determined once you have tried it. The length of time you will be required to wear a cooling system will depend on the chemotherapy drugs you are receiving. The pre-infusion cooling time is 30 mins then it remains on for the duration of the infusion. The post-infusion cooling time varies depending on the treatment you are receiving. This time can vary from 20 mins to 90 mins. It can add time to your treatment.
We advise that you speak to your oncology nurse if you intend to rent a cooling system. Many hospitals do not allow you to bring your own equipment into the hospital, so it will be important to know this in advance of purchase. Your oncology nurse will also be able clarify how much time in advance and after your treatment you will be required to use the cooling system. They can also give you a patient guide that has useful information on what to expect and how to care for your hair. They may also be able to make recommendations about alternative options.
If you would like to speak to a cancer nurse, please call our support line. Our number is 1800 200 700, and we are here Monday-Friday, from 0900-1700.
Kind regards,
Cancer Nurse