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posted by trishabc
28 August 2021

Newly diagnosed and options

Last reply: 29 September 2021 21:21
Hi, I got a diagnosis of DCIS in my right breast this week. It's a very large area so the surgeon is recommending a full mastectomy. I know I'm very lucky to have caught it early but it's still a big shock. I'm going to get reconstruction at the same time but unsure which is best. I was wondering if there's anyone out there who's had the DEIP flap done or the implant and how did they get on? Thank you
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posted by Mrs_H
01 September 2021

Waiting Times

Last reply: 02 September 2021 13:39
I had a biopsy on July 20th, which showed grade 2, Her2 positive cancer, stage 2. Since then - nothing has happened... I am waiting. Is that normal for COVID times?
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posted by Cancer Nurse
02 September 2021

Childhood, Adolecent, Young Adult Cancers Survivorship Conference – 11th September 2021.

The Irish Cancer Society is proudly supporting the virtual Childhood, Adolescent, Young Adult Cancers Survivorship Conference this year.  There will be a virtual stand available at this conference if you wish to speak with a nurse from our support line for any information about the services and supports we provide. Information about the conference, including the programme and registration can be found by clicking this link here. We know that a cancer diagnosis in a younger person can have a devastating impact on those affected, their families and communities.  Some services and supports that the Irish Cancer Society offer are: Cancer Information and advice. Through our support line, the Irish Cancer Society children’s nurse provides advice, support and information to parents.  We can be contacted by phoning 1800 200 700 or by emailing supportline@irishcancer.ie. There is also a range of information and publications available on our website. Counselling. We provide free counselling services and play therapy funded through our network of affiliated community cancer support centres. Parent Peer-to-Peer Support. In partnership with CanCare4Living, CanTeen Ireland, and the Childhood Cancer Foundation, we run Ireland’s parent peer support group for parents of children and teenagers with cancer.  Financial Assistance. The Children’s Fund and Travel2Care schemes gives direct financial support to any family who experience a childhood cancer diagnosis. Childhood Cancer Fertility Project. Providing services and developing new methods to preserve fertility for children and young adults after childhood cancer, further information can be found here. Night Nursing. We provide free in-home night nursing care for children and young adults at end-of-life. As part of our strategy 2020 – 2025 we are working to significantly enhance and expand the supports and services which we provide for children and young adults affected by cancer.  If you would like to speak with a cancer nurse about any of these services or for any support or advice, our Support line is available by phone on 1800 200 700 or emailing supportline@irishcancer.ie or alternatively you can drop into one of our Daffodil centres.
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posted by hope47
03 September 2021

Tamoxifen - how was it for you

Last reply: 07 September 2021 20:14
Hi, I was diagnosed with ER+ recently, had surgery but don’t require radiation or chemo. I’m beginning tamoxifen very soon and interested to know how people have been on it. I’m premenopausal, and generally very fit and healthy. Thanks 🙏🏻 😊
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posted by treasa77
04 September 2021

Breast Cancer. Double Massectomy.

Last reply: 09 September 2021 14:33
Hi. Just found out two days ago that there were a few very small lumps in one breast. It was only picked up on mri. Mammogram didn't pick up. I have a strong family history of breast cancer so they're recommending removing the full breast. The other breast is totally healthy but their advice is to take that too. I agreed but the reality definitely hasn't sunk in. I'm back in next week to discuss implants etc. Just wondering if anyone was in the same boat or had any advice.
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posted by lolliec123
05 September 2021

Birthmark Change

Last reply: 26 February 2022 00:43
Hi, I have a very large birthmark on my leg which up until last December had no change. Then I got a black mark on it which then turned into an ulceration. My GP sent an urgent referral as he reckons I have 4 out of 5 characteristics of melanoma. I got my appointment within 4 weeks which is the 14th of this month with the dermatologist but I was wondering what to expect at the appointment. It is an extremely large birthmark so would the call me back to biopsy it? Thanks everyone x
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posted by brightonblue
06 September 2021

Cancer in bone after allclear

Last reply: 10 September 2021 07:52
Hi, My mam (69) has contained cancer in the right humerus 12 years after breast cancer in the left breast & lymph nodes. All clear on the breast cancer some years back. This new cancer was Discovered after a pathological fracture to the humerus bone in her arm- without a fall- (a titanium rod and clips in arm required 9 weeks after fracture ). Does anyone have any experience of this? A metastses/sis after so much time in a ‘long bone’? Many thanks, I know my query is a bit specific but I am at very much at sea trying to find comparable or close to relevant experiences.
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posted by Calico
06 September 2021

Stage IV TNBC

Last reply: 20 September 2021 22:07
Hi Everyone, I hope you are all doing well. I may as well jump right in. My mother received a stage 4 TNBC diagnosis a couple of months ago...two small tumours on her lungs. She's mid seventies. I recently committed the cardinal sin of researching her diagnosis on Google and am sick with worry as a result. I know this is the most aggressive type of BC with limited treatment options compared to other BCs. She has started on oral chemo and radiation but I know the long term prognosis is very poor (12% five year survival rate). Her medical team have not explained the aggressive nature of this cancer with her and course I am keeping my fears to myself. I guess I was wondering if anyone had any advice for the journey ahead? There are so few positive stories for this type of cancer. It seems that nobody survives this diagnosis for very long. I don't know what to do. I'm desperately trying to stay positive but I just don't see how. I can't eat or sleep. Are there trials in Ireland that she could participate in? Anyway....thanks for reading and best wishes to you all.
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posted by Freesia71
07 September 2021

Metastatic Breast Cancer

Last reply: 13 September 2021 16:30
Hi Everyone. Wanted to share my story so far to see if anyone else is in the same position as me. I am 49 and in May was initially diagnosed with breast cancer. I was scheduled for surgery and after reporting a pain/lump in my neck got referred for a CT scan. The CT showed lesions in my liver so the unfortunate diagnosis of MBC came. I was on Ibrance, zoladex and letrozole for two months. Due to high liver enzymes I've been taken off the Ibrance. I am waiting to see the oncologist to see what's next. I went back to work and want to stay in work. I am finding the whole thing as nothing short of torture as it's on my mind 24/7. I was ok whilst I was on the treatment and I thought that everything was going well. How is anyone else coping with the diagnosis of MBC?
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posted by Molly29
07 September 2021

Waiting results

Last reply: 14 September 2021 19:59
I recently had surgery on my ovary. I was told post op that my ovary “appeared suspicious” and a biopsy was taken. I have been given a follow up appointment for a 6 week post op check up. I know it’s hard to say, but if it was/is anything cancer related would I be called and informed or would some biopsy results take that long?
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