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posted by siobhanc
14 April 2009

secondary breast cancer in bone.

Last reply: 30 April 2009 20:38
Hi siobhan here, i am 35 years old. was dianosed with breast cancer two years ago.. had full mastectomy , 6 mth chemo, 6wk radio therapy. on tamoxifin for 5 yr. and currently on herceptin which is on going as i found out 6 mth ago, cancer is now spread to my hip bone. had radio therapy to area for pain. did not work.. but going to try it again. on morphine for pain at moment. not great. not on bone drug yet, with will be eventually.. i am young mother of one little girl she is 7 yr old. I worry for her so much.. want so much to see her grow up.. is there any body out there in simular situation.. need to hear some good news for a change.. siobhanc
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posted by siobhanc
14 April 2009

secondary breast cancer in bone.

Last reply: 25 May 2011 14:31
Hi siobhan here, i am 35 years old. was dianosed with breast cancer two years ago.. had full mastectomy , 6 mth chemo, 6wk radio therapy. on tamoxifin for 5 yr. and currently on herceptin which is on going as i found out 6 mth ago, cancer is now spread to my hip bone. had radio therapy to area for pain. did not work.. but going to try it again. on morphine for pain at moment. not great. not on bone drug yet, with will be eventually.. i am young mother of one little girl she is 7 yr old. I worry for her so much.. want so much to see her grow up.. is there any body out there in simular situation.. need to hear some good news for a change.. siobhanc
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posted by Maeveeee
14 April 2009

Tamoxifen side effect - body odour

Last reply: 02 June 2009 21:53
I'm having trouble with a so called side effect of Tamoxifen, namely body odour - I have tried countless deodorants, includling mitchum/ vichy/ all natural products/ clarins/ deo... to no avail. I have been in contact with breast unit at Vincents but without a satisfactory answer - one person suggested I wash more frequently - which is fine except I work in an open plan office, very embarrassing and really not practical. I'm not menopausal, thankfully I don't get hot flushes but my temperature shoots up when I'm stressed and bang!! I'm in trouble. Surely someone has a cure??
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posted by YodaBear
25 August 2009

Breast Lump

Last reply: 29 August 2009 10:56
My GP found a breast lump during my annual checkup last Thurs We faxed off the referral form to the Mater, was wondering how long they act on making the appointment, the form states for my age that I may be seen within two weeks, but I could not get through to the clinic on Fri and yesterday I talked to a girl that said she would ring back in the afternoon but never did Worried but trying to stay calm Apologises if this is in the wrong area
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posted by hopeful2
27 April 2009

waiting on core biopsy results driving myself mad

Last reply: 06 May 2009 15:22
hi ladies, i have one week down of the two week wait on core biopsy results for a large lump in my left breast, i actually have two lumps, the small one they think is a breast mouse as showed solid on ultrasound and not on mammogram. i have these lumps a while and was at the doctor a few times with them, however i went three weeks ago and the gp was very concerned and sent me for an urgent appointment with the breast clinic, however that weekend which was the week before easter, i had emense pain on the sunday night and could not sleep, i tried cold and hot compresses and local anestihic gel but nothing worked, after lying awake in pain all night i went to see the gp on the monday and she squessed me in between appointments. the pain was like when a wasp stings you and the acid is going in to the skin, but continual, so the gp rang the breast clinic to know could they see me that week or would she send me in through casualty. the registrar said he would fit me in on the thursday afternoon breast clinic and the doc put me on antibiotics, antiinflamotories and painkillers till then as she could not see an infection but was sure one was present. when i seen the registrar on thursday he had a look and said he would have to get the consultant, she is lovely and said i had an abscess the size of an orange that had been festering with a while, so put me on three strong antibiotics and continue the anti imflamotries until first appointment on tuesday as they had to clear the infection to examine the breast properly. i went back on the tuesday and they sent me straight in for an ultrasound and that was inconclusive for both lumps so sent me for a mammogram, i got the results on the thursday from that and the specialist believed that the small lump was a mouse and the large lump was a solid suspicious mass measuring 6cm with uneven edges and califications, drew it out like a childs picture of a cloud, she recommended a ultrasound guided biopsy the following tuesday which was last week. she also said she gave it a rating of 3 although i seen 3/4 written on radioligist report in biro, she also said it had to come out either way as too large to leave it. i tried to get an opinion from the radiologist last week and bascially got nothing, just it may or may not be something and wait for the pathologist report but it has to be removed either way. that was not too bad till i discovered it takes two weeks for the results to come back and they sent me a follow up appointment for next tuesday the day the results are due back. so bascially i am driving myself mad and cant sleep at night for worrying about scenarios. i am 35 and very healthy otherwise, i have a small chest and the lumps are visible through the skin and the large one has a few bits jutting out through the skin, the gp always thought it was a fibrodema or a cyst but obviously her opinion was before it started causing all this trouble. i have no pain in the large lump now since infection cleared except for swelling and bruising from the biopsy. has anyone had a similar experience as i am worried. thanks girls
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posted by yaya
19 July 2011

genetic testing

Last reply: 20 July 2011 22:57
Hi, I have been put forward for genetic testing as myself and my sister both with breast cancer and aged 38 and 39. My Surgeon has sent a letter to the team in Crumlin but said it could be six months before test and six months wait for results as takes a lot of time to find the rogue genes. I was wondering had anyone had it done recently. I think Flo mentioned she had in an earlier post. I'm trying to find as much info as I can as i know there will prob be decisions re ovaries and other boob! I had left Mastectomy and i'm taking tamoxifin and my sister is having chemo weekly as she has secondary in lung. If anyone has any advice that would be great before I get app for testing. Thanks so much
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posted by marymc
19 May 2009

breast reconstruction surgery

Last reply: 24 October 2009 20:30
Hi I'm scheduled for Lattismus Dorsai Flap reconstruction soon and wonder if there's anyone out there who has had this and what their experience was? I had a left masectomy in Sept 2007 following by chemo and Herceptin. Have made a great recovery - so be positive anyone that's newly diagnosed there's light at the end of the tunnell! Definitely up for having the surgery now - it'll be nice to have hair AND two boobs again, but would just like some feedback from ordinary women who have been thru it?
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posted by Evelyn
06 June 2009

I am so afraid

Last reply: 27 June 2010 19:07
Hi everyone I found a swelling in my left breast around Christams but as I was going into hospital of an operation on a shoulder problem I ignored the swelling. I went to my GP Tuesday week and she was concerned, I saw the specialist yesterday. He said the lump (not swelling) is 5 cm and thinks it has been there a while. I have to go for mammogram, ultrasound and core biopsy on Tuesday and I did not ask if I would get any results even then. I have no pain in the breast the lump is on the top and I do have a little discomfort towards my armpit. I know I just have to wait for the outcome but I cannot help crying. I am 48 year old divorcee with 2 children a 21 year old girl and an 18 year old boy (sitting his leaving cert) I have told noone. I dont even know what I want from you girls at the moment, just any thing you can tell me about procedures and waiting time for results. Thanks for taking the time to read this, and good luck to you all. Evelyn
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posted by SLR
25 June 2009

Dip in the Nip

Last reply: 26 June 2009 16:39
From someone who has come through mastectomy, chemo and reconstruction in the last 10 months, I'd just like to say thank you very much to all the women who took part in the Dip in the Nip last weekend. You've raised much needed funds and increased awareness of the services provided by Action Breast Cancer. If it happens again next year I might even be brave enough myself to bare all!
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posted by G- Sheahan
09 October 2009

Nipple reconstruction

Last reply: 20 October 2009 10:58
Hi guys! I was 26 when I was diagnosed with bc. Treatment including chemo and radiation followed. Managed fine, was very strong mentally through it. I was advised to get genetic testing done as we have a long familly history. Dianosed with brac1 and decided on bilateral mast with immidiate reconstruction(using lit dors musel). Unfor I'm not very happy with results as the scarring is awful front and back. Breasts look completely diff as the shape of scars dont match(behind cloths they look symetrical).Just got date for nipple reconstruction and I'm very nervous for some reason!! Anyone out there that has gone through this? Do the nippels make the breasts look better and more normal? Thanks greta
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