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posted by garcon
27 April 2010

Starting radiotherapy next week

Last reply: 03 May 2010 12:26
Hi all, Me again, still moaning on here....... Next stop radiotherapy! Any advice out there please? Will I be even more knackered? I'm wrecked thinking about it. Thanks for the support. Celine
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posted by Deema
04 May 2010

immediate reconstruction after masectomy

Last reply: 30 May 2010 13:26
Hello Everyone I am new to this, just diagnosed last Thursday so still trying to get my head around everything, I had a biopsy done late in Feb and everything came back totally clear!! When I saw Doctor again he told me they were going to take out the lump as a precaution, which I had done 3 weeks ago, all went well according to doctor, he said they were proberly being overcautios, so I was quite happy, I went back on Thursday expecting good news but was told that I have to have Masectomy as lump was invasive cancer and also I have DCIS Total Shock as I was not prepared for this at all He also wants to do Reconstruction at the same time which I thought was a good idea but have since had conflicting reports Just looking for some advice,
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posted by smithers
13 May 2010

JOINING THE CLUB!

Last reply: 01 June 2010 23:22
Hi all, I was told last Friday I had breast cancer. Only found the lump the previous Saturday so things have been moving very fast!! Was back at the hospital yesterday as the biopsy results were only back and they confirmed what they had already told me. The tumour is 2.5 cm with a "suspicious" mass around it which the surgeon isn't happy with so she thinks we will most likely be looking at mastectomy but she wants to do chemotherapy first for 6 months. It's also in my lymph node so she will be doing auxiliary node clearance as well. She said it is at stage T2 at the moment, what she is calling early cancer Thank God. However, I have been having pains in may shoulders and arms, so have to get more scans next week to rule out that it has spread anywhere else. Please God these come back negative waiting for them is going to be torture as I have taken just about all I can take I have a sore throat now and every bloody twinge has me thinking is it there now too!
15 comments
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posted by petal
14 May 2010

advice please

Last reply: 01 June 2010 11:44
Hi Finally built up the courage to join up, being checking in and out for ages. Anyway I have had b/c, was diagnosed September 08, had tumour in one breast and dcis in the other. Had surgery followed by chemo and radiation. I am well thank god but need help on firstly buying a bra that suits, its a mission i've been on a while. Need advice on complimentary treaments that I can have, have heard some are to be avoided? Also any one having problems with their feet since chemo? Any help would be most appreciated. Thank you
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posted by hugs
29 May 2010

Chemo advice?

Last reply: 10 June 2010 11:35
I should be starting chemo in about 3 weeks or so. My oncolgist is away next week, I havent met him yet. Ive found lots of advice on the american and british message boards. People seem to make up 'chemo' bags. with lots of supplies. There is also a huge list of side effects. But i thought it might be nice to get some info from you guys who have gone throught it here. What tips and hints are useful? How sick did you feel while having the treatment, how tired? My main concern is will I be able to drive during the treatment? Or will i not be able to drive at all, or will it only be on the treatment days that i wont be up to it. I know everyone is different, and i suppose the waiting around is probably going to give me plenty of time to imagine the worst senarios Somehow I was able to block it from my brain while having all the operations....but time is ticking now
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posted by d gee
19 May 2010

Breast and arm pain post radiation

Last reply: 08 June 2010 16:59
Help please re the above. Am getting lot of pain since radiation Had massage. No arm swelling. Going for mammogram on Monday -so scared as am so sore. Gemgee
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posted by garcon
25 May 2010

Enjoying radiotherapy?

Last reply: 21 June 2010 22:31
Hi everyone, Sorry been sooo long since I've been on here. The radiotherapy is keeping me busy I can tell ya. Had No: 16 today, just 19 to go....... Actually I know it sounds bizarre and maybe this time next week I'll be cracking up but.... is it possible to enjoy radiotherapy? I get to drive on my own there, have no pain, generally go for coffee. Little bit of browsing around the shops, odd cake here and there...... yes putting on a bit of weight but not too much. I am seriously being kind to myself, a bit indulgent really. My children are well looked after and I have some time to myself. Actually cos I have a childminder in the afternoon, I have tried to have afternoon appointments so I can have a lie-in in the morning and make my way up at my leisure. As far as the actual treatment is concerned, I'm afraid to tempt fate to say that its going bloody fantastic and my energy has not been this good since I got diagnosed. Am I heading for a fall? All you experienced ladies out there, feel free to knock me off my happy perch if you think I'm in the rosy period. My children and hubby are fine and so sweet actually, like telling each other to be good so I can have a rest awh..... Feel like a bit of a fraud really. I have sorted more clothes, bedrooms, clutter since I started this treatment, its mad! Anyone else out there enjoying it? Ok if I should be carted off, let me know. Thanks, Garcon
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posted by Kar
09 June 2010

Friday D-Day

Last reply: 08 July 2010 00:14
Hi Everyone, My story is a little long so bear with me and apologies in advance for the waffle..... Mid May I woke with a terrible pain in my left boob. I examined myself but didn't feel anything. The pain continued so I kept checking. A few days later I found a small lump in the shower. As my period was due I thought I'd wait and see if it went after it finished. Being the consummate worrier I kept checking and 2 days later I found a lump in my arm pit. I went to my GP that same morning and she said she didn't think I had anything to worry about but she would refer me for triple assessment to make sure. She tried to get me an appointment for the clinic but couldn't get through so she decided to make an appointment with a surgeon instead. I saw the Surgeon in St Vincents on 27th May. He examined both lumps and told me I had nothing to worry about. He said (I quote) "the lymph node is clinically benign, everyone is entitled to an enlarged lymph node, and the breast lump is nothing to be concerned about". I asked if it was a cyst and he said probably.....!!He said he'd send me for an ultrasound for "CLOSURE". I was out of the office in less than 5 minutes - probably 3. I had the ultra sound on Thursday (02/06) and it all went desperately wrong. The radiologist took one look at the breast lump and said it didn't look like a cyst. The lump is solid and has jagged edges and the lymph node is also solid. When I asked for her professional opinion she said the breast lump concerned her but the fact I had two suspicious lumps she was very concerned. She did a biopsy of both (ouch). I was due to see the surgeon this morning but the results weren't back - bank holiday weekend. I have a new appointment for Friday at 1.15. I have a mammogram before hand at 12. I'm so confused, terrified, angry etc I don't know what to think. How could the surgeon have got it so wrong? He works with his hands and feels lumps all day. Has anyone had a similar experience? If the results are positive should I change surgeon or get a second opinion? I'm 36, single with no history of breast cancer in my family. My Father died from lung cancer 3 years ago (heavy smoker). Many thanks for reading this and again, apologies for the waffle. Kar
28 comments
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posted by jam
15 June 2010

Living with secondary BC at 26, is there any alternative?

Last reply: 29 August 2010 01:49
Hi all fellow BC sufferers, I was first diagnosed with estrogen and her2 positive breast cancer at 22, had mastectomy and recon plus lymph nodes removed, 6 months of chemo, radio and a year of herceptin. Was getting on with my life on tamoxifen for 2 years, had just turned 26 when was diagnosed with secondaries in my hip bone. Had pin put in femar and am now back on herceptin, along with zometa to strengthen bones, zoladex and femara for the past year. I was just recently married when the cancer came back coming up to my first anniversary now and have only just nearly got my head around everything. I have been coping with cancer for 4 years but always stayed away from the internet and discussion groups as I found it made me more scared in the beginning and I didn't think anyone was as young as me, but I have just got to the point where I am beginning to not even care what happens to me as anything has to be better than the side effects I am suffering on all these drugs. I feel like a 75 year old woman (no offence to the elderly) and so far away from what a normal 26 year old woman should feel like. I am even considering alternative treatments, much to the shock and worry of my family and friends but nobody seems to understand how bad I feel and everyone keeps telling me I look great. Living with secondary breast cancer is supposed to be about having a good quality of life for however long you have left isn't it and I just don't think that is possible being on this kind of treatment. If I was given a time frame of when I might be able to come off the drugs or even some glimmer of hope I might see the point..........I'm sick of having absolutely no control over my life, is there anyone out there in a similar situation who knows of any alternative? Please help, Jam
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posted by hugs
21 June 2010

Taylorx clinical trial.

Last reply: 06 July 2010 17:28
I have been asked to take part in the taylor x trial. Im just wondering if anyone here is involved in it? I have to wait till the 1st of july (more waiting...lol) to get the results. The tumour was sent off to america for a specific test. There is a chance that i might escape having to have chemo...fingers crossed!!!!
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