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posted by Von23
09 May 2023

Biopsy Result

Last reply: 23 May 2023 10:10
I was called today and asked to come in this Thursday to get my biopsy results. Does this mean it is more than likely bad news? Just wondering what common practice is. This waiting is so hard.
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posted by Coming off Tamoxifen
17 May 2023

Coming off Tamoxifen

I came off Tamoxifen on the 13th May after 10 years, I do feel slightly anxious coming off it even though I did have some side effects whilst taking it. I'm wondering if anyone has experienced any bad side effects when they came off Tamoxifen - what they are and how long they lasted. I've read on some forums, mainly English ones, that some people experience quite bad tiredness and fatigue and what they describe as 'brain fog'. I have noticed that I'm feeling quite tired the last few days but, having only finished taking Tamoxifen on Saturday, I don't know if I would be feeling the effects this quickly. Has anyone else experienced this?
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posted by Maggiemakes
05 May 2023

Bad first time chemotherapy reaction

Last reply: 11 May 2023 14:42
Hi there, I was diagnosed in January with IDC 3cm tumor and 1 sentinel glad with 5mm met. My doctor said it's localised I've had a lumpectomy and started the 1st of 4 AC's to be follwed by taxol every week for 12 weeks. After my first AC last week I became extremely unwell 3 days after and was diagnosed with septicaemia I became extremely unwell and am currently in hospital and will be for another few days at the least. My 2nd chemo can now not take place obviously. Has anybody had anything similar happen to them ? Im so upset as I follwed everything they said to the letter but this has happened. They cannot find the source of the infection which is worrying. I'm 56 and in general good health. Any advice or similar problem I would much appreciate to hear.
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posted by ccg2
07 May 2023

Tamoxifen brands switch

Last reply: 08 May 2023 15:08
Hi I've been on tamoxifen for 6 weeks. 4 weeks on 10mg and 2 on 20mg. Since upping the dose I'm struggling with side effects. Acid reflux very extensive skin rash fatigue sweats flushes. I have read online but mostly on UK forums that changing brands sometimes helps. I'm on rexa brand just wondering if anyone has experience of this working with brands in Ireland. I'm contemplating going back to pharmacy to see if they will swap a packet but I don't know of any other brands. Anyone done this?
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posted by Greenday
02 October 2022

Radiotherapy and Implants

Last reply: 02 May 2023 22:17
Hi I am due to start 21 session so of radiotherapy next week. My margins were close and near the chest wall hence radiotherapy. However I was so disheartened to find out that capsular contracture is a possibility. Have you experienced this after radiotherapy or did you manage to avoid it ?
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posted by Er34
06 April 2023

Herceptin tomorrow

Last reply: 09 April 2023 13:34
Hello. I've had my chemo and my surgery. Now tomorrow I start my herceptin. Its a shot in the thigh every 3 weeks. Can anyone tell me what to expect? Are there any side effects? Will I need to remove my trousers? Thankyou
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posted by lizzie01
11 March 2023

Abemaciclib

Last reply: 29 March 2023 13:22
Has anyone been able to get access to Abemaciclib? It is not yet approved for reimbursement by the HSE but I wondered if anyone has been able to get it prescribed privately. I think it costs about €3k a month.
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posted by Paddy007
17 March 2023

Triple Negative Breast Cancer that can't be treated with Pembrolizumab

Last reply: 20 March 2023 14:37
I've been living with stage four positive breast cancer for 4 years now my cancer has mutated to triple-negative and I cannot be treated with Pembrolizumab. Looking for people to talk i
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posted by carrie1983
04 March 2023

Lump in breast, scared

Last reply: 07 March 2023 19:38
Hi everyone I'm looking for advice please. Last Tuesday I found a lump in my right breast. I went to my GP the next day. She found another lump in the same breast. I'm almost 40. I don't have any children. I've been referred to Beaumont clinic but In all honesty I'm terrified. Whenever I'm alone my head starts spinning to worst case scenario. Husband is very supportive but I'm trying to hide my fear from him. Does any have a rough idea of wait times for Beaumont? I'm driving myself crazy here. I tried ringing but no joy. Thank you
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posted by rubiablanch
25 February 2023

Eribulin / hair loss

Last reply: 07 March 2023 16:59
Hi there Does anyone know if the hair loss is severe on this chemo? Do Mater Public do cold cap? thanks x
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