Community

Hi all, I'm a hormone receptor-negative, HER2+ metastatic breast cancer patient receiving Paclitaxel, Pertuzumab and Trastuzumab on the first week of each cycle, Paclitaxel on the second week and then a third week off. I have osteoporosis that predates this relapse and take a Prolia (Denosumab) 60mg injection every six months to protect my bones. This is my first injection while on chemotherapy and I'm wondering if it's safe? My doctor said it was fine, but didn't really stop to think about it and I'd value a second opinion if anyone has had any experience!

Hi...I was diagnosed with stage 2 grade 3 IDC her 2 neg not in nodes. Finished AC therapy and I am due to start taxol for 4 rounds. AC was not great as in tired and weak shaky feeling but that was it basically....not bad really. How do women find taxol therapy? I know chemo affects people differently but just a general idea would be great. I'm done with no energy for few days after chemo with kids on school holidays.

I don't know what to feel think, say or do. I turned 39 in April and as a present I was told I have breast cancer. I had a lumpectomy on May 31st and nodes were removed. They thought tumour was 2cm and that it didn't look like any nodes were effected. I got my results yesterday. Tumour was 3.4cm and 5 of the 6 nodes have cancer in them. I now have to have every single node removed from.my armpit. I think its called axillary clearance. I was told I'm borderline stage 2/3 but that can go up based on results of axillary clearance. Chemo will start about 6 weeks after this next op. And last for 6 months(maybe more, maybe less). I have 2 young girls. Amira, meaning princess, is nearly 8 and a huge worrier and over thinks everything (like me) and Yara, meaning little Butterfly, is 3 and a huge Mammys girl and was breastfed up until 2 weeks before my first op. I havent told either of them yet what's going on. I was hoping to have lumpectomy and radio therapy as was thought initially based off ultrasound and scans. Now I will have to tell them. Have you advice about how to tell a complete worrier and Mammys girl almost 8 yr old. I don't know how or what to say. And also I'll have to say something to my 3 yr old. How do a explain things but not have it scary? I'm scared. Amira will be 8 on Friday and all thats going through my head is .... Will I be alive for 9th? Its so over whelming for me. I also have a tumour consistent with looks to be a meningioma which is parked aside for now. I feel like I've a huge mountain to climb and I don't know how to do it and still be a mammy. My husband works long hours. He's gone from 5.30 am til about 6.30pm so I do everything else, school runs,(about 25/30 min from home) activities (about 35 mins from home) and playdates, parties etc. Plus all in the house. We've cats, dog and chickens. Is there anyone who is in similar situation to me? How did you manage everything? How sick were you? Have you recovered? Did it get worse? I feel alone, I don't know anyone similar age with young family with this horrible diagnosis. Plus since my op, I cane home to a 5 day tummy bug inn3 yr old then I got uti and the bug, now I'm over them and she gets a uti (started antibiotics yesterday evening) yesterday (yes day of results) and 40.2 degrees fever I'm struggling to keep down. How do ye manage cancer, chemo and surgeries with young family? Sorry for long post. I feel completely derailed and overwhelmed. Thank you for reading.

Hi, I have been diagnosed with stage 4 BC about three months ago, am on Ibrance/Anastrazole and starting on Zometa injections. Had initial BC four years ago, after that clear Mammograms. By chance they detected nodules in my lungs through a CT scan, and now have confirmed it to be secondary BC. It is also in my bones and lymphnodes. Would love to hear from someone in similar situations...it's an avalanche of treatments and a rollercoaster of emotions and thoughts...

Hi everyone, I was just wondering if anyone else has had the same problem. After my lumpectomy I developed cording in my armpit, going down past my elbow. I got physiotherapy for it, and it was as good as gone. I am doing my exercises every day. But now it's actually back again. The therapist signed me off last week, saying my range of movement is great. I told her then that it felt like the cording is coming back, but she just said to continue with exercises. Has anyone else experienced that? I thought, or hoped, once it's gone its gone.

Cancer diagnosis 7.5 years ago Triple positive all the therapies Been recalled back after mammogram check up and in a heap Convinced it is back again could it be scar tissue causing a distorted image all these years on ? Thanks - going insane

Hello 👋🏻 I have my appointment in the breast clinic on Thursday as you can imagine I’m up in a heap as I have a very large lump roughly 5cm so I’m imagining if it is cancer it’s going to be later stage? Could you tell me please how long I’ll be waiting for results? I honestly don’t know how much more of a wait I can take I’ve downplayed it to my husband as he’s a major worrier and obviously I haven’t told my teenage children yet. Thanks in advance xxx

Had a biopsy two weeks ago and when I rang the hospital for update they said could be another two weeks before I get a result. (They had said two weeks when having the biopsy). Is this Covid or staffing delays, anyone else experiencing the same thing? I don’t think they would leave it this long if cancer showing?

Hi, I was diagnosed with early breast cancer last year at the age of 33. It was found by accident when in for a chest X-ray for an unrelated issue and so was a huge shock. Thankfully it was a type that’s not very aggressive and it hadn’t gone anywhere. I had a lumpectomy, 3 weeks of radiotherapy and am now on tamoxifen. When I was diagnosed myself and my husband had just started trying to get pregnant so it was pretty tough to have to put those plans on hold as well as dealing with the diagnosis. My oncologist has said if I do two years of tamoxifen then it has been proven safe to come off it to try and get pregnant. I’m just wondering is there anybody out there in a similar position who has done the two years of tamoxifen and had a successful pregnancy? Thanks

Hello, I am 1.5 years out from diagnosis and mastectomy for stage 1 breast cancer that didn't spread to the nodes. I requested a CT scan recently and was advised yesterday that there are 2 tiny nodules on my right lung. Naturally I'm in bits but I'm also confused as I was told I had clear margins as well as clear nodes and mastectomy. I also chose to have chemo which was optional. Anyone else ever get these nodes post breast cancer and they are benign? Thanks