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Hi all, I just swapped from nolvadex to tamox brand. I was fine on nolvadex but pharmacist said they cannot get it any more. I'm so sick on tamox and my hair is falling out and I feel so tired. I really want to go back onto Nolvadex. Anyone having similar issues? Fedupwithtamox.com

Hello to all the beautiful courageous women that end up coming here looking for answers, support or reassurance, as I did too a few days ago. Like some or most of you I also found changes in my breast and went to my GP to ask for a mammogram as I'm 48 and not covered by the national screening program yet. What followed were 3 weeks of uncertainty and disbelief. After the mammogram I was sent for an ultrasound. After the ultrasound I had a biopsy of 4 samples and 4 titanium tiny pins inserted into my breast to highlight the precise location from my samples. And then was sent home to wait for 2 weeks. On the first week I got very busy at work and tried to stay positive thinking breastcancer was not a death sentence anymore and that although a terrifying experience, I was sure to have caught it early...but on the second week I found by pure chance a hard small lump over my left collarbone that drained all the blood from my face and changed my mood, energy and positivity, wondering if the cancer could have spread and could it actually be terminal...That became the most stressful week of my life just waiting for the results.... And the results came back negative, I did not have breast cancer, but I broke down at the clinic sobbing uncontrollably for 5 minutes. When I finally managed to compose myself I told the doctor waiting for 2 weeks to know whether you have breast cancer is inhumane and unbereable, and another unnecessary suffering inflicted on women in this island. And that's when he told me what I wish I had known before embarking on this journey! Speaking of the Breast clinic I attended in Dublin he said when they highly suspect breast cancer in a woman the team talks to the woman on the same day of the biopsy to prepare her for bad news, and they prioritise her biopsy results to avoid her a long waiting time. He said at no point the medical team reviewing my case suspected I had cancer, and he did apologise if anyone in the clinic made me think so, which I did feel it was the case with every single nurse wishing me good luck, and my radiologist really very worried over my mass of extended scar tissue without having suffered any injury or trauma in the area... So I wanted to share this piece of information with you just in case someone else is in a similar situation...Luckily for me I don't know how fast they would have acted had I got breast cancer, but I do want to believe him and trust that when something is wrong with any of us, our health system kicks into action ASAP without punitive delays that only add to the stress and anxiety of the millions of people facing this disease.

Anyone reading this who is also caring for a loved one with a gbm4 diagnosis? It's heartbreaking to watch, in my case it's my husband and best friend. He's my hero. The rapid growth of his tumour in just a month left him in a wheelchair with no mobility on his left side. I am lucky to have home help, I wouldn't survive without it. The hardest thing now is preparing myself for life without him. I have some idea of what to expect as he declines, I can already see a dip in his strength and memory loss returning. He has had 6 weeks of radiation and chemo. That finished at the start of August. The uncertainty is difficult.. No one can tell you when major changes will happen. I pray for the strength to keep smiling for him and I thank God for every day. I miss him already as the disease robs more of his personality, at least he is not in pain. All he wants is to wiggle his toes, and of course stand up and walk. Maybe today I can make him smile. Small steps.

Hi all, looking for some advice! My mum has been recently diagnosed with grade 4 brain tumors. She has just completed 3 weeks of radiation and chemo (tablets at home). We haven’t been given a timeline or any useful information from the doctors just that they’ll scan her in a few weeks time. The palliative care have been great calling to the house etc but I have no details on what to expect, how long she will live, what to expect next and when I need to get more help in. Very hard to ask the doctors any questions as can’t chat in front of my mum. We’re all heart broken and have no information or clue who to ask so all suggestions welcome!

Any one on this chat with mesothelioma or a relative with it? My daddy was diagnosed last year and has had treatment and 8months without treatment now his mesothelioma is active again, we have been looking into clinical trials for immunotherapy but it’s a placebo trial and u and not guaranteed that u will get the treatment. Has anyone ever had this treatment or are currently on it? We could just go and have more chemotherapy but would like to hear other people’s opinion? Thank you for reading

Is anyone out there going through treatment for this cancer or any survivors out there? I got diagnosed with this cancer, the Tumour was removed, but the healing is taking so long, infection, MRSA, continues to need to drain. PAIN!!! and that's before follow up treatment, chemo or radiotherapy. Any help or thoughts or suggestions more than welcome. My email is Killasser@outook.com. Thanks Joe.

Hello I am wondering could anyone recommend a plastic surgeon who specialises in breast reconstruction and corrective surgery. I underwent a preventative double mastectomy with immediate reconstruction using implant and ADM earlier this year. Unfortunately there has been displacement of one of the implants and I am eager to correct this. I would obviously like to get the best outcome and wish to have a surgeon who comes highly recommended and skilled in corrective surgery. I also do not mind travelling anywhere within Ireland. I would greatly appreciate any help with this matter.

Hi I am on tamoxifen seven months now and while some side effects have diminished I find the fatigue is not improving much despite walking every day etc. Has anyone on this drug longer than me seen an improvement over the long term or is this it ?

Does anyone know where you can get a id braclet to let people know you can not have bloods or bp taken from hand with no lymph nodes

My Mother has been just diagnosed with ovarian cancer, she has been given roughly 6 months. It's too late for treatment. She has also just been diagnosed with dementia. I have no experience of cancer or of a loved one being ill. I'm looking for advice from others who have been in the boat.