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posted by April
27 February 2012

ER Negative

Last reply: 29 February 2012 12:28
I finish my radiation therapy soon. Oncologist tells me all is going well,had dcis, good margins, lymph nodes clear, ER neg. should i be worried that i have not been prescribed medication? Anyone else in the same boat?
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posted by Madge1
08 March 2012

Emotions or madness?????

Last reply: 14 May 2012 17:53
Hi all Having a really bad day can't stop crying scaring hubbie. Don't know where to turn. Finished TCH surgery and radio still on herceptin outlook positive but feeling so low have nobody to talk to and even harder to find someone who understands cant figure out how to get into Chatroom so decided to rant here. Have obnoxious sulky 15 year old son who has turned into a monster I don't recognise not sure how much of this is normal teenage stuff and how much is influenced by my BC his friends mother died recently from cancer which really shook him. Other children acting up too but seem to be able to cope with them ok. Best friend is finding it difficult to acknowledge cancer easier to pretend its not there, sister great but doesn't understand. Don't know what I am writing but it's stopping me crying!!!!! Hope mood passes and I can function better for the weekend. Thanks for letting me vent. Love to everyone x
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posted by 2ndtimeround
24 March 2012

triple negative

Last reply: 28 March 2012 14:54
hi im new to this was diagnosed with breast cancer in may 2008 had lumpectomy followed by chemo and radiotherepy.was told i was treble negative.all was well until last may when i was diagnosed in other breast had lumpectomy followed by mastectomy started chemo again but had to be stopped after 2rounds because of side effects no radiotherapy offered as i was told it would do no good .at present i am on no treatment but told because i was treble negative both times likelyhood of it coming back is greater .is there anyone that has similar experience as i feel i am living under death sentence.
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posted by wilmaone
31 March 2012

Finally finished chemo and feeling so low!!!!

Last reply: 23 April 2012 20:05
Hi all Finished 6 rounds of chemo TCH on thursday,and the happiness i thought i would feel at having chemo behind me just hasnt come quite the opposite!!!Is this normal? I feel i shouldnt complain as i got though it with not too many side effects,worst being not able to eat for week after.Im not one to ask for help as i feel id be giving in.Have a month to get sorted before mastectomy and reconstruction in early may,need to have my positive head on but just cant seem to find it. Has anyone else felt like this Help
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posted by encee
20 April 2012

Things I didn't know last January!

Last reply: 23 January 2013 14:49
Well, wasn't that one hell of a quick year!! I am coming down from a day of a huge high after getting my results of MRI/ultrasound/mammogram which were all good and made me grateful that surgery, chemotherapy, radiotherapy and now Herceptin all did a great job on getting rid of cancer - so far, so good! I knew nothing about breast cancer last year only negative things:- it was something to fear and it wrecked lives. It is still something I wouldn't like to keep around like a pet puppy, but I didn't know how successfully it can be eradicated when caught in time, and with the right care and treatment. It certainly wrecks lives but I've been so lucky that I am blessed with the amount of love and support that I have been shown and continue to receive that it can make you appreciate what you have. I still have a few doses of Herceptin to go through, so it's very reassuring to know that I will be cossetted in the bosom of the oncology team and if I think there is a problem, the Fairy Godnurses and doctors will look into it immediately; but I came away today feeling even happier to know that I will get seen twice a year for five years. I will not be cast off into the wildnerness and have a great team that genuinely care about my health and me. I have learnt there is so much more to breast cancer than the cancer; it has tested my time and patience with family and friends, it has tested my patience with myself and made me learn to lean on these people, not to be afraid to talk, and get up of my arse and not let it change who I am, despite what I look like! I know it's not the same for everyone, and that unfortunately breast cancer isn't always as lenient as it has been to me so far but if nothing else, I hope that other women (and men!) who do find themselves in the mire of being newly diagnosed with breast cancer learn that it's not all doom and maybe learn that if you get a second chance, then take it with both hands and run with it!
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posted by Dane7
27 April 2012

New to Breast Cancer

Last reply: 04 May 2012 16:24
Hi all I am 46 diagnosed on my 46th birthday with IDC with signs of inflammatory breast cancer. Presented with huge amounts of pain in the right breast and some discolouration but no lumps. Nothing showed up on Mamo but ultrasound showed problems with lymph nodes. So to cut to chase cancer in lymph nodes and MRI reveals 2 tumors in breast and inflammatory breast cancer under nipple. Started chemo this week Taxotere and Cyclophosphamide 6 sessions proposed. Had a reaction to the Taxotere the next day and an antihistimine is taking care of that. Feel tired and emotional, scalp a bit tingly so best get head gear and wig sorted. A few questions how long post chemo day do you feel any bit like yourself? and what can you expect to be able to do work, exercise etc? How on earth do you get your head round a mastectomy (due in Nov). Being large chested just can't get my head around the grotesqueness of being left lopsided for more than a year as reconstruction will have to wait until 1 year post radiotherapy? Of all the bits involved in breast cancer I just can't stop thinking of and crying about the surgery or butchery as I see it. I know it has to come off if they are to save me but finding it so hard. Is this a natural thought ... did anyone else feel like this? Will appreciate any advice from the wise. Feeling lost and low I guess it is the shock as this all happened in less than a month - ie no time for planning:-) Any advice greatfully accepted. Dane 7
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posted by lemrac
27 April 2012

First time posting - recurrence after 12 fantastic years!

Last reply: 11 May 2012 14:28
Had mastectomy, chemo, radiotherapy 12 years ago when I was 40. All brill till before Christmas when it came back on my lung. Thankfully, doctors are very positive about it and telling me I'll be around for a very long time. First scan since starting hormone treatment next Wednesday so just feeling 'slightly terrified'! Would love people to pray for me. Thanks a mil everyone.
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posted by faith96
30 April 2012

Advice about reconstruction

Last reply: 15 May 2012 16:31
Hi folks, am new onto this site. Aged 37. Diagnosed Nov 11 finished 6 doses chemo, am on Herceptin for rest of year. Been told need mastecomy because of size of tumor - 5 cm at diagnosis but has definately reduced. Also had tiny spots on lung and they also reduced in last scan I had (Feb - just after 3rd chemo) Not sure if need radiotherapy yet think they waiting on results from op. Met surgeon earlier this month and he recommended that I get reconstruction. Having spent last few months getting head round having breast removed to be told it could be reconstructed was a 'nice' surprise. While was in with him he called surgeon in Galway and they set date for 24 May. Met surgeon in Galway last week and he thinks that best option for me is implant because of previous surgery on tummy. There are 2 different types of implant options available but not sure what I should do? Was wondering if anybody on here could give me advice. Is the inflatable one better than the silicon one? Think edging towards inflatable one because of what I read about radio treatment afterwards. Hope that is clear, any questions please ask and look forward to getting your responses.
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posted by fluffy
30 April 2012

Alternative to taking Tamoxifen

Last reply: 02 May 2012 22:36
I was diagnosed with DCIS in March this year... I have had 2 operations to remove an area of DCIS which was approx 5mm. I was told that this cancer was only stage 1 and very small. Im doing 6 weeks of Radiotherapy and have just started my 5 year course of Tamoxifen. In 2009 I had an ovary removed due to an ovarian cyst that was over 10cm in diameter... If Tamoxifen is prescribed to block the production of eastrogen, why aren't we offered a full hystorectomy ???? Surely this is safer ?? My concern is that when I finish the 5 year course of Tamoxifen my body will go back to its normal cycle and once again start to produce eastrogen... Is there any medical reasons to not be offered a hystorectomy...???
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posted by wilmaone
30 April 2012

Round 2 nearing the finish line!!!

Last reply: 05 May 2012 22:02
Hi all Am posting this from hospital bed.surgery first thing in morning early start and long day awaits.Am remarkably calm at moment(although sleeping tablet at ready!!) Please cross fingers and say a little prayer that mastectomy and reconstruction all go well. Thanks
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